INCA is excited to announce that the paper “Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET healthcare professionals” was published in the esteemed Union for International Cancer Control (UICC) International Journal of Cancer. The Unmet Needs Survey was championed by INCA, working in close collaboration with the NET medical societies around the world. The survey findings were published just prior to World NET Cancer Day on November 10 to reinforce our efforts to raise awareness about the plight of neuroendocrine cancer patients.
“The results of this survey, which we think are the first of their kind, comparing the perceptions of patients and healthcare professionals, will form the basis for our important work moving forward. The key recommendations by the authors including improving correct and understandable patient information at diagnosis, improving access to diagnostics and theranostics, access to MDTs and specialist centres, greater education of nurses and HCPs and including patient input into research will continue to drive our collaborative work, as we strive to improve NET patient outcomes around the globe”- Simone Leyden, INCA President.