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NET Cancer Day   10 November 2023

Easily missed.Take a closer look at Neuroendocrine Cancer.

 #LetsTalkAboutNETs    #NETCancerDay

I was shocked when i found out, i cried for my family, I thought I would never see spring flowers again.. but I did and I appreciated them more.
Patient
Sue Williams (UK)

2018, I had lost two stone, busy life, family and full time job, at 56 I thought that was how life was? Relaxing after a shower, hands on my body, I found my lump! Must be a hernia? Off to the GP.. ultra sound ordered and done. 1 hour after my GP rang me as I was walking around a garden centre alone. He said there is something very wrong and we need to investigate further. So off to the MRI in Manchester, lovely Dr looked at me and said, you should be very poorly ? My answer was, I am fine. Further investigation revealed that I had a Panceatic NET 18 x8 cm, my goodness the size of a bath sponge! And you have properly had it for two years?

I have just finished my 40th cycle of chemotherapy so 40 months! I take Capecitabine and Temozolomide with some anti sickness thrown in (tablets) I have bloods every month and a CT scan every 3 months. I have had NO side effects at all, I feel very lucky to have an amazing team at The Chistie led by DR Valle. My tumor is slowly shrinking and is now 12cm, onwards and upwards, my life is led to the full, i make the most of every day. I was shocked when i found out, i cried for my family, I thought I would never see spring flowers again.. but I did and I appreciated them more. So here is looking forward to spring, hope my story helps as many of your stories have been so very helpful to read.

Good luck to all my NET family.

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Nicholas (Kenya)

My name is Nicholas Rotich. I am a Kenyan. 47 years old. Hobbies: Farming and environmental conservation How were you diagnosed and how...

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Angela (Brazil)

My name is Ângela Maria Rocha, I'm 54 years old, I'm from Brazil and I live in Minas Gerais, in the city of...

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Oliver (Germany)

My name is Oliver. I live in Germany, I am 59 years old, I have been married for 35 years, I have 2 children, 4 grandchildren...

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Yu Qi (Taiwan)

Age: 51 years old Name: Yu Qi Country: Taiwan Hobbies: travelling, making new friends, learning new things. How were you diagnosed and how...

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Luciano (Italy)

I’m Luciano. I was born in Milan in 1949. I am married and I have one daughter. I currently live in Monza...

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Karin (Belgium)

I am Karin from Belgium, 64 years old. I live in a green village in Limburg and am a mother of 3 children and...

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Anne (The Netherlands)

My name is Anne Zeijpveld. I’m 45 years old and was born in The Netherlands, but have lived in Seattle, United States...

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Jasmyn (USA)

My name is Jasmyn Ramirez, I’m 21 years old from California in the United States! I’m a fourth-year college student majoring...

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Amanda (Australia)

My name is Amanda and I live in Australia. I am a lover of netball. My favorite thing is to take my...

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Mei-Ying (Taiwan)

Name: CHEN, MEI-YING, Female Age: 65 years old Hobbies: Hang out with friends and do outdoor activities. How were you diagnosed and how...

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Michael (South Africa)

My name is Michael Meredith, I am 75, married and live in the Western Cape in a beautiful village called Riebeeck Kasteel, which...

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Duncan (South Africa)

My name is Duncan Macduff and I am 45 years old. I am fortunate to live in the beautiful city of Cape Town...

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Ruben (Argentina)

I am Ruben, 57 years old, from Argentina. How were you diagnosed and how long did it take?  I had diarrhoea and rectal...

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Mariska (Netherlands)

My name is Mariska Masselink, I live in the Netherlands. My age is 53. I love walking my dog, a wonderful Dachshund, reading...

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Michael (Israel)

Michael Rosenberg, born in Bucharest, Romania on 26/12/1952. I emigrated to Israel in 1970 at 18 years of age, studied Computer Science. Lived in South...

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Julian (Germany)

I am Julian , Germany, 33 years old.  Motorcycles are my hobby. How did you get your diagnosis? How long did it take? I...

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Jean-Pierre (Canada)

My name is Jean-Pierre Durand, I live in Quebec, Canada. I’m 69 years old and my hobbies are travelling, camping, hiking, skiing...

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Geoff (Australia)

My name is Geoff Tomlin, 76 years old and I have lived in Tasmania, Australia all of my life. I have been married...

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Adriana (Uruguay)

I am Adriana, 67 years old, from Uruguay. How were you diagnosed and how long did it take?  It took 10 years. Since 2012 I...

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Paul (USA)

My name is Paul Kaczmarek. I am 48 years old and I live in the United States. I like being in the outdoors...

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Lydia (UK)

My name is Lydia, 16 years of age and diagnosed with MEN1 when I was 4 years old. MEN1 is on my dad’s...

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Dr Sugandha Dureja (India)

I am Dr Sugandha Dureja, MD, FEBNM, a Nuclear Medicine physician working in New Delhi India. I am trained in Theranostics from...

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Tanisha (USA)

My pheochromocytoma journey began in the late year of 2008. I didn’t have symptoms but a light fainting episode. I went to...

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Simon (Canada)

My name is Simon and I’m 36 years old. I live in Quebec, Canada. I’m an aerospace engineer and a proud...

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Richard (Kenya)

My name is Richard Kiprono Ngeno from Kapsoit, Kericho County of Kenya. I am a 37-year-old man and a small-time farmer. My...

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Pauline (France)

I am Pauline, 33 years old and I live in France. I love board games, knitting and swimming. I was discovered my NET...

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Julie (UK)

My name is Julie Rose, I am 48 (49 in November) and I used to enjoy taking part in a lot of fitness, running...

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Esteve (Spain)

My name is Esteve, I was born in Barcelona and I am 56 years old. I have a great family and I am...

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Dr Mark Lewis (USA)

My name is Mark Lewis. I am living in the USA but was born in Scotland. I am 42 years old. I work...

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Dirk (Belgium)

Dirk Van Genechten, Belgian (Flemish), 62. Hobbies: my grandchildren, traveling, good food and wine, petrolhead (cars and motorcycles). How were you diagnosed and...

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Barbara (Italy)

My name is Barbara. I am 51 years old, I was born in Rome and live in Santarcangelo di Romagna close to Rimini...

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Sue Williams (UK)

2018, I had lost two stone, busy life, family and full time job, at 56 I thought that was how life was? Relaxing after...

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David Corbin (UK)

I was first diagnosed in August 2019 and after seeing multiple consultants in a short period of time I was referred to Sheffield...

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Andreia (Portugal)

I was diagnosed in August 2013 after 5 years of dealing with a recurring pain attributed to a cyst in my left ovary. The...

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Amanda (UK)

I was diagnosed as being menopausal at 48 in 2014 and opted for HRT so from then on I was getting regular checks and...

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Adam Martin (Northern Ireland)

For 18 months I thought I had a food intolerance, or IBS as almost every time I ate I had stomach pains. The...

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Pauline Mather (UK)

I was diagnosed with neuroendocrine cancer of my pancreas & liver February 2019. I had major Whipple surgery May 2019 at Freeman hospital Newcastle...

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Marbellys Bayne-Azcarate (UK)

I was diagnosed in October 2015 with Stage IV Neuroendocrine Cancer. I had been experiencing intermittent and unexplained abdominal pain for five years...

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NETs are more common than brain, ovarian, and cervical cancer and incidence is on the rise.

We need the help of our global community to raise awareness and improve diagnostic times and the quality of life for NET patients around the world.

On November 10, help us spread the word

Know the symptoms. Push for diagnosis. #LetsTalkAboutNETs