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NET Cancer Day   10 November 2023

Easily missed.Take a closer look at Neuroendocrine Cancer.

 #LetsTalkAboutNETs    #NETCancerDay

I was only 29 when I was diagnosed with NET cancer.
PATIENT
Pauline (France)

I am Pauline, 33 years old and I live in France. I love board games, knitting and swimming. I was discovered my NET fortuitously in 2017. It took 9 months to diagnose midgut NET G1 with multiple hepatic metastases and a marked carcinoid syndrome.

I have SSA treatment and had bowel surgery + 2 chemoembolization with various complications.

The announcement of my NET was difficult, I was 29 years old and I had to learn to live with the rhythm of my fatigue, my pains, and hospitalizations with anxieties such as the unknown, death, fear of treatments, isolation. With my husband we saw our projects collapse: we made the decision not to have children (this is too risky), or buying a house, a project we have forgotten for the moment. I had to give up my job as a caregiver and was dismissed in March 2021.

Despite all this, there is a positive point I learned to take care of myself, to listen to myself, and to listen to my body, and it is a shame for a caregiver. I am fortunate to have a very present husband, family, and friends.

There is a person who inspires me every day, a deceased friend. He had cystic fibrosis and lung cancer and he defied science by living over the age of 40 years old, he had a strength that I have never seen anywhere else, I always felt small in front of him. I even had a hard time imagining that he was sick. I always think of him and even more so when it’s difficult: what would Gus say to you? Without a doubt to keep hope, to be positive and this damn disease will not get the better of us. I feel lucky that life has put it in my way. So: “Fight yourself”.

I am a member of Apted that I discovered a little time before the official announcement of my NET because at the time I was told of a neuroendocrine lesion. The association has been very supportive, both by Christine the President and also by other patients. I discovered beautiful people with sometimes a more chaotic course than mine. They became friends.

Thanks to Apted I met recently 3 other persons with whom we created a Facebook and Instagram page: My Neuro-Endocrine Tumor. We share testimonies under different themes.

Today I am well, I am stable. I still have fatigue and pains, but I enjoy every day that life gives me and the main one I am HERE.

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Nicholas (Kenya)

My name is Nicholas Rotich. I am a Kenyan. 47 years old. Hobbies: Farming and environmental conservation How were you diagnosed and how...

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Angela (Brazil)

My name is Ângela Maria Rocha, I'm 54 years old, I'm from Brazil and I live in Minas Gerais, in the city of...

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Oliver (Germany)

My name is Oliver. I live in Germany, I am 59 years old, I have been married for 35 years, I have 2 children, 4 grandchildren...

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Yu Qi (Taiwan)

Age: 51 years old Name: Yu Qi Country: Taiwan Hobbies: travelling, making new friends, learning new things. How were you diagnosed and how...

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Luciano (Italy)

I’m Luciano. I was born in Milan in 1949. I am married and I have one daughter. I currently live in Monza...

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Karin (Belgium)

I am Karin from Belgium, 64 years old. I live in a green village in Limburg and am a mother of 3 children and...

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Anne (The Netherlands)

My name is Anne Zeijpveld. I’m 45 years old and was born in The Netherlands, but have lived in Seattle, United States...

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Jasmyn (USA)

My name is Jasmyn Ramirez, I’m 21 years old from California in the United States! I’m a fourth-year college student majoring...

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Amanda (Australia)

My name is Amanda and I live in Australia. I am a lover of netball. My favorite thing is to take my...

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Mei-Ying (Taiwan)

Name: CHEN, MEI-YING, Female Age: 65 years old Hobbies: Hang out with friends and do outdoor activities. How were you diagnosed and how...

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Michael (South Africa)

My name is Michael Meredith, I am 75, married and live in the Western Cape in a beautiful village called Riebeeck Kasteel, which...

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Duncan (South Africa)

My name is Duncan Macduff and I am 45 years old. I am fortunate to live in the beautiful city of Cape Town...

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Ruben (Argentina)

I am Ruben, 57 years old, from Argentina. How were you diagnosed and how long did it take?  I had diarrhoea and rectal...

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Mariska (Netherlands)

My name is Mariska Masselink, I live in the Netherlands. My age is 53. I love walking my dog, a wonderful Dachshund, reading...

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Michael (Israel)

Michael Rosenberg, born in Bucharest, Romania on 26/12/1952. I emigrated to Israel in 1970 at 18 years of age, studied Computer Science. Lived in South...

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Julian (Germany)

I am Julian , Germany, 33 years old.  Motorcycles are my hobby. How did you get your diagnosis? How long did it take? I...

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Jean-Pierre (Canada)

My name is Jean-Pierre Durand, I live in Quebec, Canada. I’m 69 years old and my hobbies are travelling, camping, hiking, skiing...

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Geoff (Australia)

My name is Geoff Tomlin, 76 years old and I have lived in Tasmania, Australia all of my life. I have been married...

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Adriana (Uruguay)

I am Adriana, 67 years old, from Uruguay. How were you diagnosed and how long did it take?  It took 10 years. Since 2012 I...

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Paul (USA)

My name is Paul Kaczmarek. I am 48 years old and I live in the United States. I like being in the outdoors...

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Lydia (UK)

My name is Lydia, 16 years of age and diagnosed with MEN1 when I was 4 years old. MEN1 is on my dad’s...

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Dr Sugandha Dureja (India)

I am Dr Sugandha Dureja, MD, FEBNM, a Nuclear Medicine physician working in New Delhi India. I am trained in Theranostics from...

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Tanisha (USA)

My pheochromocytoma journey began in the late year of 2008. I didn’t have symptoms but a light fainting episode. I went to...

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Simon (Canada)

My name is Simon and I’m 36 years old. I live in Quebec, Canada. I’m an aerospace engineer and a proud...

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Richard (Kenya)

My name is Richard Kiprono Ngeno from Kapsoit, Kericho County of Kenya. I am a 37-year-old man and a small-time farmer. My...

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Pauline (France)

I am Pauline, 33 years old and I live in France. I love board games, knitting and swimming. I was discovered my NET...

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Julie (UK)

My name is Julie Rose, I am 48 (49 in November) and I used to enjoy taking part in a lot of fitness, running...

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Esteve (Spain)

My name is Esteve, I was born in Barcelona and I am 56 years old. I have a great family and I am...

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Dr Mark Lewis (USA)

My name is Mark Lewis. I am living in the USA but was born in Scotland. I am 42 years old. I work...

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Dirk (Belgium)

Dirk Van Genechten, Belgian (Flemish), 62. Hobbies: my grandchildren, traveling, good food and wine, petrolhead (cars and motorcycles). How were you diagnosed and...

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Barbara (Italy)

My name is Barbara. I am 51 years old, I was born in Rome and live in Santarcangelo di Romagna close to Rimini...

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Sue Williams (UK)

2018, I had lost two stone, busy life, family and full time job, at 56 I thought that was how life was? Relaxing after...

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David Corbin (UK)

I was first diagnosed in August 2019 and after seeing multiple consultants in a short period of time I was referred to Sheffield...

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Andreia (Portugal)

I was diagnosed in August 2013 after 5 years of dealing with a recurring pain attributed to a cyst in my left ovary. The...

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Amanda (UK)

I was diagnosed as being menopausal at 48 in 2014 and opted for HRT so from then on I was getting regular checks and...

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Adam Martin (Northern Ireland)

For 18 months I thought I had a food intolerance, or IBS as almost every time I ate I had stomach pains. The...

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Pauline Mather (UK)

I was diagnosed with neuroendocrine cancer of my pancreas & liver February 2019. I had major Whipple surgery May 2019 at Freeman hospital Newcastle...

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Marbellys Bayne-Azcarate (UK)

I was diagnosed in October 2015 with Stage IV Neuroendocrine Cancer. I had been experiencing intermittent and unexplained abdominal pain for five years...

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NETs are more common than brain, ovarian, and cervical cancer and incidence is on the rise.

We need the help of our global community to raise awareness and improve diagnostic times and the quality of life for NET patients around the world.

On November 10, help us spread the word

Know the symptoms. Push for diagnosis. #LetsTalkAboutNETs