I was diagnosed in October 2015 with Stage IV Neuroendocrine Cancer. I had been experiencing intermittent and unexplained abdominal pain for five years; at the beginning of 2015 I also started having palpitations, hot dry flushes, elevated blood pressure, breathlessness and temporary loss of vision.
I had several misdiagnoses and given treatment for IBS, early onset menopause, high blood pressure, anxiety, depression and asthma.
Finally a locum GP asked me to describe everything that I had been experiencing and referred me to an endocrinologist who finally gave me the correct diagnosis. It was a very stressful time, but receiving that diagnosis was also a relief and a validation that I knew all along something wasn’t right with my body.
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Sandra (USA)
My name is Sandra Dillon and I’m 53 years old. I have 4 grown children and 3 wonderful grandchildren. I live in Florida, USA...
Read StorySheri (South Africa)
Sheri Fairbank, age 44, from South Africa. Hobbies: Yoga, Art, theatre, time at the beach, meditation. I am a very hands-on mum of...
Read StoryJack (New Zealand)
I'm Jack van der Salm from New Zealand, currently 66 years old, and with my wife Jo-Ann, we own a dairy farm at...
Read StoryKatja (The Netherlands)
My name is Katja Starrenburg and I live in Alphen aan den Rijn, the Netherlands. I am 51 years old, married, and I...
Read StoryMichel (Mexico, Canada)
My name is Michel DeQuevedo, I am a 52-year-old Mexican - Canadian musician living in Hamilton ON, Canada. How were you diagnosed...
Read StoryCorinne (France)
My name is Corinne, I am a 61 year-old GP, married to an A & E doctor, I have two children - a...
Read StorySergio (Chile)
My name is Sergio Alvarado, I am from Chile, 53 years old. I am Professor of Mathematics and a veterinary doctor. I have...
Read StoryBritta (Denmark)
My name is Britta, I am 73 years old and live in Denmark. I live in a flat with my dog. My current...
Read StoryBill (USA)
My name is Bill Thach, I am a 38 year-old living in the United States in the state of Texas. I am married...
Read StoryNicholas (Kenya)
My name is Nicholas Rotich. I am a Kenyan. 47 years old. Hobbies: Farming and environmental conservation. How were you diagnosed and how...
Read StoryAngela (Brazil)
My name is Ângela Maria Rocha, I'm 54 years old, I'm from Brazil and I live in Minas Gerais, in the city of...
Read StoryOliver (Germany)
My name is Oliver. I live in Germany, I am 59 years old, I have been married for 35 years, I have 2 children, 4 grandchildren...
Read StoryYu Qi (Taiwan)
Age: 51 years old Name: Yu Qi Country: Taiwan Hobbies: travelling, making new friends, learning new things. How were you diagnosed and how...
Read StoryLuciano (Italy)
I’m Luciano. I was born in Milan in 1949. I am married and I have one daughter. I currently live in Monza...
Read StoryKarin (Belgium)
I am Karin from Belgium, 64 years old. I live in a green village in Limburg and am a mother of 3 children and...
Read StoryAnne (The Netherlands)
My name is Anne Zeijpveld. I’m 45 years old and was born in The Netherlands, but have lived in Seattle, United States...
Read StoryJasmyn (USA)
My name is Jasmyn Ramirez, I’m 21 years old from California in the United States! I’m a fourth-year college student majoring...
Read StoryAmanda (Australia)
My name is Amanda and I live in Australia. I am a lover of netball. My favorite thing is to take my...
Read StoryMei-Ying (Taiwan)
Name: CHEN, MEI-YING, Female Age: 65 years old Hobbies: Hang out with friends and do outdoor activities. How were you diagnosed and how...
Read StoryMichael (South Africa)
My name is Michael Meredith, I am 75, married and live in the Western Cape in a beautiful village called Riebeeck Kasteel, which...
Read StoryDuncan (South Africa)
My name is Duncan Macduff and I am 45 years old. I am fortunate to live in the beautiful city of Cape Town...
Read StoryRuben (Argentina)
I am Ruben, 57 years old, from Argentina. How were you diagnosed and how long did it take? I had diarrhoea and rectal...
Read StoryMariska (Netherlands)
My name is Mariska Masselink, I live in the Netherlands. My age is 53. I love walking my dog, a wonderful Dachshund, reading...
Read StoryMichael (Israel)
Michael Rosenberg, born in Bucharest, Romania on 26/12/1952. I emigrated to Israel in 1970 at 18 years of age, studied Computer Science. Lived in South...
Read StoryJulian (Germany)
I am Julian , Germany, 33 years old. Motorcycles are my hobby. How did you get your diagnosis? How long did it take? I...
Read StoryJean-Pierre (Canada)
My name is Jean-Pierre Durand, I live in Quebec, Canada. I’m 69 years old and my hobbies are travelling, camping, hiking, skiing...
Read StoryGeoff (Australia)
My name is Geoff Tomlin, 76 years old and I have lived in Tasmania, Australia all of my life. I have been married...
Read StoryAdriana (Uruguay)
I am Adriana, 67 years old, from Uruguay. How were you diagnosed and how long did it take? It took 10 years. Since 2012 I...
Read StoryPaul (USA)
My name is Paul Kaczmarek. I am 48 years old and I live in the United States. I like being in the outdoors...
Read StoryLydia (UK)
My name is Lydia, 16 years of age and diagnosed with MEN1 when I was 4 years old. MEN1 is on my dad’s...
Read StoryDr Sugandha Dureja (India)
I am Dr Sugandha Dureja, MD, FEBNM, a Nuclear Medicine physician working in New Delhi India. I am trained in Theranostics from...
Read StoryTanisha (USA)
My pheochromocytoma journey began in the late year of 2008. I didn’t have symptoms but a light fainting episode. I went to...
Read StorySimon (Canada)
My name is Simon and I’m 36 years old. I live in Quebec, Canada. I’m an aerospace engineer and a proud...
Read StoryRichard (Kenya)
My name is Richard Kiprono Ngeno from Kapsoit, Kericho County of Kenya. I am a 37-year-old man and a small-time farmer. My...
Read StoryPauline (France)
I am Pauline, 33 years old and I live in France. I love board games, knitting and swimming. I was discovered my NET...
Read StoryJulie (UK)
My name is Julie Rose, I am 48 (49 in November) and I used to enjoy taking part in a lot of fitness, running...
Read StoryEsteve (Spain)
My name is Esteve, I was born in Barcelona and I am 56 years old. I have a great family and I am...
Read StoryDr Mark Lewis (USA)
My name is Mark Lewis. I am living in the USA but was born in Scotland. I am 42 years old. I work...
Read StoryDirk (Belgium)
Dirk Van Genechten, Belgian (Flemish), 62. Hobbies: my grandchildren, traveling, good food and wine, petrolhead (cars and motorcycles). How were you diagnosed and...
Read StoryBarbara (Italy)
My name is Barbara. I am 51 years old, I was born in Rome and live in Santarcangelo di Romagna close to Rimini...
Read StorySue Williams (UK)
2018, I had lost two stone, busy life, family and full time job, at 56 I thought that was how life was? Relaxing after...
Read StoryDavid Corbin (UK)
I was first diagnosed in August 2019 and after seeing multiple consultants in a short period of time I was referred to Sheffield...
Read StoryAndreia (Portugal)
I was diagnosed in August 2013 after 5 years of dealing with a recurring pain attributed to a cyst in my left ovary. The...
Read StoryAmanda (UK)
I was diagnosed as being menopausal at 48 in 2014 and opted for HRT so from then on I was getting regular checks and...
Read StoryAdam Martin (Northern Ireland)
For 18 months I thought I had a food intolerance, or IBS as almost every time I ate I had stomach pains. The...
Read StoryPauline Mather (UK)
I was diagnosed with neuroendocrine cancer of my pancreas & liver February 2019. I had major Whipple surgery May 2019 at Freeman hospital Newcastle...
Read StoryMarbellys Bayne-Azcarate (UK)
I was diagnosed in October 2015 with Stage IV Neuroendocrine Cancer. I had been experiencing intermittent and unexplained abdominal pain for five years...
Read StoryNETs are more common than brain, ovarian, and cervical cancer and incidence is on the rise.
We need the help of our global community to raise awareness and improve diagnostic times and the quality of life for NET patients around the world.
On November 10, help us spread the word
Know the symptoms. Push for diagnosis. #LetsTalkAboutNETs