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NET Cancer Day   10 November 2023

Easily missed.Take a closer look at Neuroendocrine Cancer.

 #LetsTalkAboutNETs    #NETCancerDay

NETs are uncommon cancers but need attention, awareness, and access to adequate care as much as, if not more than other cancers.
HEALTHCARE PROFESSIONAL
Dr Sugandha Dureja (India)

I am Dr Sugandha Dureja, MD, FEBNM, a Nuclear Medicine physician working in New Delhi India. I am trained in Theranostics from Germany and have a special interest in Radionuclide therapies for neuroendocrine tumors (NETs).

I am very passionate about making treatment equitable and accessible for all cancer patients, and with this vision, started a NET support and advocacy group called CNETS India. We are supporting patients all across the Indian subcontinent.

Do you remember the first NET patient you diagnosed? Or when you first learned about NETs?
I learned first about NETs when we started Gallium imaging in the year 2010, while I was undergoing my Nuclear medicine training. I was interested in Theranostics and went on to get trained further at one of the largest ENETS Centres of Excellence at Bad Berka, Germany with Prof Richard Baum, whom I consider my guru.

What symptoms do you see most frequently with NETs patients?
The most common patient group presenting to us is GEP NETS. These patients present frequently with altered bowel habits and abdominal pains.

What makes NETs so hard to diagnose?
Vague symptoms, often overlapping with other common non-cancer illnesses.

I would also add, that many times physicians do not suspect this diagnosis, given the low incidence, which further delays the correct diagnosis.

What is needed in the healthcare profession to increase awareness around NETs?
More awareness – we need to keep our suspicion high, in order to detect the disease.

And frequent refresher/CME courses – we tend to forget things we don’t see often in our clinical practice.

If you have one message for the general public regarding NETs, what would it be?
NETs are uncommon cancers but need attention, awareness, and access to adequate care as much as, if not more than other cancers. Support our voice.

Browse Stories

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Nicholas (Kenya)

My name is Nicholas Rotich. I am a Kenyan. 47 years old. Hobbies: Farming and environmental conservation How were you diagnosed and how...

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Angela (Brazil)

My name is Ângela Maria Rocha, I'm 54 years old, I'm from Brazil and I live in Minas Gerais, in the city of...

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Oliver (Germany)

My name is Oliver. I live in Germany, I am 59 years old, I have been married for 35 years, I have 2 children, 4 grandchildren...

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Yu Qi (Taiwan)

Age: 51 years old Name: Yu Qi Country: Taiwan Hobbies: travelling, making new friends, learning new things. How were you diagnosed and how...

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Luciano (Italy)

I’m Luciano. I was born in Milan in 1949. I am married and I have one daughter. I currently live in Monza...

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Karin (Belgium)

I am Karin from Belgium, 64 years old. I live in a green village in Limburg and am a mother of 3 children and...

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Anne (The Netherlands)

My name is Anne Zeijpveld. I’m 45 years old and was born in The Netherlands, but have lived in Seattle, United States...

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Jasmyn (USA)

My name is Jasmyn Ramirez, I’m 21 years old from California in the United States! I’m a fourth-year college student majoring...

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Amanda (Australia)

My name is Amanda and I live in Australia. I am a lover of netball. My favorite thing is to take my...

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Mei-Ying (Taiwan)

Name: CHEN, MEI-YING, Female Age: 65 years old Hobbies: Hang out with friends and do outdoor activities. How were you diagnosed and how...

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Michael (South Africa)

My name is Michael Meredith, I am 75, married and live in the Western Cape in a beautiful village called Riebeeck Kasteel, which...

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Duncan (South Africa)

My name is Duncan Macduff and I am 45 years old. I am fortunate to live in the beautiful city of Cape Town...

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Ruben (Argentina)

I am Ruben, 57 years old, from Argentina. How were you diagnosed and how long did it take?  I had diarrhoea and rectal...

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Mariska (Netherlands)

My name is Mariska Masselink, I live in the Netherlands. My age is 53. I love walking my dog, a wonderful Dachshund, reading...

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Michael (Israel)

Michael Rosenberg, born in Bucharest, Romania on 26/12/1952. I emigrated to Israel in 1970 at 18 years of age, studied Computer Science. Lived in South...

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Julian (Germany)

I am Julian , Germany, 33 years old.  Motorcycles are my hobby. How did you get your diagnosis? How long did it take? I...

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Jean-Pierre (Canada)

My name is Jean-Pierre Durand, I live in Quebec, Canada. I’m 69 years old and my hobbies are travelling, camping, hiking, skiing...

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Geoff (Australia)

My name is Geoff Tomlin, 76 years old and I have lived in Tasmania, Australia all of my life. I have been married...

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Adriana (Uruguay)

I am Adriana, 67 years old, from Uruguay. How were you diagnosed and how long did it take?  It took 10 years. Since 2012 I...

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Paul (USA)

My name is Paul Kaczmarek. I am 48 years old and I live in the United States. I like being in the outdoors...

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Lydia (UK)

My name is Lydia, 16 years of age and diagnosed with MEN1 when I was 4 years old. MEN1 is on my dad’s...

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Dr Sugandha Dureja (India)

I am Dr Sugandha Dureja, MD, FEBNM, a Nuclear Medicine physician working in New Delhi India. I am trained in Theranostics from...

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Tanisha (USA)

My pheochromocytoma journey began in the late year of 2008. I didn’t have symptoms but a light fainting episode. I went to...

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Simon (Canada)

My name is Simon and I’m 36 years old. I live in Quebec, Canada. I’m an aerospace engineer and a proud...

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Richard (Kenya)

My name is Richard Kiprono Ngeno from Kapsoit, Kericho County of Kenya. I am a 37-year-old man and a small-time farmer. My...

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Pauline (France)

I am Pauline, 33 years old and I live in France. I love board games, knitting and swimming. I was discovered my NET...

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Julie (UK)

My name is Julie Rose, I am 48 (49 in November) and I used to enjoy taking part in a lot of fitness, running...

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Esteve (Spain)

My name is Esteve, I was born in Barcelona and I am 56 years old. I have a great family and I am...

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Dr Mark Lewis (USA)

My name is Mark Lewis. I am living in the USA but was born in Scotland. I am 42 years old. I work...

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Dirk (Belgium)

Dirk Van Genechten, Belgian (Flemish), 62. Hobbies: my grandchildren, traveling, good food and wine, petrolhead (cars and motorcycles). How were you diagnosed and...

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Barbara (Italy)

My name is Barbara. I am 51 years old, I was born in Rome and live in Santarcangelo di Romagna close to Rimini...

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Sue Williams (UK)

2018, I had lost two stone, busy life, family and full time job, at 56 I thought that was how life was? Relaxing after...

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David Corbin (UK)

I was first diagnosed in August 2019 and after seeing multiple consultants in a short period of time I was referred to Sheffield...

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Andreia (Portugal)

I was diagnosed in August 2013 after 5 years of dealing with a recurring pain attributed to a cyst in my left ovary. The...

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Amanda (UK)

I was diagnosed as being menopausal at 48 in 2014 and opted for HRT so from then on I was getting regular checks and...

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Adam Martin (Northern Ireland)

For 18 months I thought I had a food intolerance, or IBS as almost every time I ate I had stomach pains. The...

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Pauline Mather (UK)

I was diagnosed with neuroendocrine cancer of my pancreas & liver February 2019. I had major Whipple surgery May 2019 at Freeman hospital Newcastle...

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Marbellys Bayne-Azcarate (UK)

I was diagnosed in October 2015 with Stage IV Neuroendocrine Cancer. I had been experiencing intermittent and unexplained abdominal pain for five years...

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NETs are more common than brain, ovarian, and cervical cancer and incidence is on the rise.

We need the help of our global community to raise awareness and improve diagnostic times and the quality of life for NET patients around the world.

On November 10, help us spread the word

Know the symptoms. Push for diagnosis. #LetsTalkAboutNETs