My name is Bill Thach, I am a 38 year-old living in the United States in the state of Texas. I am married with a 6 year-old daughter. I work at an IT Consultant and enjoy cycling, running and anything that surrounds itself around food and the outdoors.
How were you diagnosed and how long did it take? What form of NETs were you diagnosed with? And had the NET spread to other parts of your body?
At first, I experienced repeated occurrences of blood in my stool. My general practitioner dismissed it as hemorrhoids, but I was not satisfied with this diagnosis. I sought a second opinion from another doctor, who then referred me for a colonoscopy. The process of consultations and referrals took approximately two months. I received my diagnosis on November 8, 2018. It was identified as Neuroendocrine Carcinoma, Grade 3, originating in the rectum. Initially categorized as Stage 3, it was later upgraded to Stage 4 due to its spread to the bladder, prostate, liver, and seminal vesicles.
What treatment have you had and how did it affect you then and now?
- Carboplatin + Etoposide
- 25 rounds of radiation + Capecitabine
- Folfiri
- Folfirinox
- Surgery: Removal of rectum, prostate, bladder, seminal vesicles, parts of liver, muscle from abdomen to fill pelvis, radiation of margins
- Liver ablation
- RP 3500 + Olaparib(clinical trial targeting ATM mutation)
- Vudalimab(clinical trial, immunotherapy)
- ART 6043(clinical trial targeting ATM mutation)(Present)
The journey of treatments has been nothing short of transformative. It has acquainted me intimately with the depths of pain and endurance. Through it, I’ve discovered the essence of adaptability. Enduring bouts of nausea, fatigue, widespread cramping, persistent neuropathy, and surgical pain, I’ve been compelled to reassess every aspect of my lifestyle. From dietary choices to physical activity, psychological well-being, and relationships, I’ve embraced the necessity of control. I’ve learned to optimize my energy levels, appreciate the healing properties of food, and cherish the simple ability to move.
What impact has the diagnosis had on your personal life?
It’s been a journey with its highs and lows. Through it all, I’ve discovered my true friends, those family members and companions who genuinely care for me and have illuminated the essence of love for me.
What lessons have you learnt along the way (if any)?
The journey through cancer has taught me profound lessons. It has shown me the remarkable strength and resilience that lies within us, even in the face of adversity. This strength not only serves as a beacon of hope for fellow patients but also for anyone encountering challenges in life. Furthermore, a cancer diagnosis prompts a reevaluation of priorities, emphasizing the importance of meaningful connections and experiences. It fosters a deep sense of gratitude for the support received and a heightened appreciation for life’s simple pleasures. Through practices like mindfulness and self-reflection, patients learn to navigate uncertainty with grace, embracing each moment with mindfulness and purpose. Importantly, their experience cultivates empathy and compassion, motivating them to support others and advocate for change. Additionally, cancer patients realize the significance of advocating for themselves, actively participating in treatment decisions and seeking necessary resources.
Who’s been your hero? Perhaps it was you!
The heroes in my journey are the individuals who have stood by me since the moment of my diagnosis. Whether friends or family, they consistently carve out time from their busy lives to check on me, visit me, and ensure that I feel supported. Their unwavering presence reminds me that I am not facing this challenge alone, filling my days with love and reassurance.
How are you now?
Currently, I am on a new trial drug and just finished my first cycle. I have another cycle to complete before I have a restaging scan to see if the drugs are helping to control my disease. In the interim, I am currently training for an Ultra Marathon and hope to continue doing in addition to taking the step of sharing my story and spreading awareness to our rare disease.
