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NET Cancer Day   10 November 2023

Easily missed.Take a closer look at Neuroendocrine Cancer.

 #LetsTalkAboutNETs    #NETCancerDay

It took 10 years (for diagnosis). In Uruguay there are no specialists in neuroendocrine tumors.
PATIENT
Adriana (Uruguay)

I am Adriana, 67 years old, from Uruguay.

How were you diagnosed and how long did it take? 

It took 10 years. Since 2012 I have had depression and I went to psychologists and psychiatrists after my mother died. I had various symptoms, of all kinds: headaches, muscle aches, perspiration, and I was very tired. In 2017 my daughters took me to a neurologist. He scratched my arm with a pen, and sent her for a urinalysis. It started from very high adrenaline. Then a 24-hour study of urine, and they came to the diagnosis. Throughout the years I went to six psychologists, a psychiatrist, an internist, a neurologist and an oncologist. In Uruguay there are no specialists in neuroendocrine tumors.

What impact has the diagnosis had on your personal life ?

The whole process was very distressing for my daughters. The uncertainty stressed us all.

What lessons have you learnt along the way (if any)?

Know your symptoms and push for diagnosis (the title of the campaign is perfect in my case). We need doctors to know more about this and other diseases.

Who’s been your hero? Perhaps it was you!

My doctor, who’s not a specialist, helped me a lot with my diagnosis.

Did you get any help from a patient organisation during your journey?

No.

How are you now? 

Very well, in the company of my family, and in contact with the ACIAPO patient group.

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NETs are more common than brain, ovarian, and cervical cancer and incidence is on the rise.

We need the help of our global community to raise awareness and improve diagnostic times and the quality of life for NET patients around the world.

On November 10, help us spread the word

Know the symptoms. Push for diagnosis. #LetsTalkAboutNETs