This year we have continued to compile patient stories from different places around the world.
NETs are STILL misdiagnosed for years. Help us educate the public and raise awareness so that more people Know the symptoms and can Push for diagnosis.
Share someone’s story below, or even better share your own! It might save someone’s life.
View these stories in your language by using the Google Translate button above.
Name: CHEN, MEI-YING, Female Age: 65 years old Hobbies: Hang out with friends and do outdoor activities. How were you diagnosed and how...Read Story
My name is Michael Meredith, I am 75, married and live in the Western Cape in a beautiful village called Riebeeck Kasteel, which...Read Story
My name is Duncan Macduff and I am 45 years old. I am fortunate to live in the beautiful city of Cape Town...Read Story
I am Ruben, 57 years old, from Argentina. How were you diagnosed and how long did it take? I had diarrhoea and rectal...Read Story
My name is Mariska Masselink, I live in the Netherlands. My age is 53. I love walking my dog, a wonderful Dachshund, reading...Read Story
Michael Rosenberg, born in Bucharest, Romania on 26/12/1952. I emigrated to Israel in 1970 at 18 years of age, studied Computer Science. Lived in South...Read Story
I am Julian , Germany, 33 years old. Motorcycles are my hobby. How did you get your diagnosis? How long did it take? I...Read Story
My name is Jean-Pierre Durand, I live in Quebec, Canada. I’m 69 years old and my hobbies are travelling, camping, hiking, skiing...Read Story
My name is Geoff Tomlin, 76 years old and I have lived in Tasmania, Australia all of my life. I have been married...Read Story
I am Adriana, 67 years old, from Uruguay. How were you diagnosed and how long did it take? It took 10 years. Since 2012 I...Read Story
My name is Paul Kaczmarek. I am 48 years old and I live in the United States. I like being in the outdoors...Read Story
My name is Lydia, 16 years of age and diagnosed with MEN1 when I was 4 years old. MEN1 is on my dad’s...Read Story
I am Dr Sugandha Dureja, MD, FEBNM, a Nuclear Medicine physician working in New Delhi India. I am trained in Theranostics from...Read Story
My pheochromocytoma journey began in the late year of 2008. I didn’t have symptoms but a light fainting episode. I went to...Read Story
My name is Simon and I’m 36 years old. I live in Quebec, Canada. I’m an aerospace engineer and a proud...Read Story
My name is Richard Kiprono Ngeno from Kapsoit, Kericho County of Kenya. I am a 37-year-old man and a small-time farmer. My...Read Story
I am Pauline, 33 years old and I live in France. I love board games, knitting and swimming. I was discovered my NET...Read Story
My name is Julie Rose, I am 48 (49 in November) and I used to enjoy taking part in a lot of fitness, running...Read Story
My name is Esteve, I was born in Barcelona and I am 56 years old. I have a great family and I am...Read Story
My name is Mark Lewis. I am living in the USA but was born in Scotland. I am 42 years old. I work...Read Story
Dirk Van Genechten, Belgian (Flemish), 62. Hobbies: my grandchildren, traveling, good food and wine, petrolhead (cars and motorcycles). How were you diagnosed and...Read Story
My name is Barbara. I am 51 years old, I was born in Rome and live in Santarcangelo di Romagna close to Rimini...Read Story
2018, I had lost two stone, busy life, family and full time job, at 56 I thought that was how life was? Relaxing after...Read Story
I was first diagnosed in August 2019 and after seeing multiple consultants in a short period of time I was referred to Sheffield...Read Story
I was diagnosed in August 2013 after 5 years of dealing with a recurring pain attributed to a cyst in my left ovary. The...Read Story
I was diagnosed as being menopausal at 48 in 2014 and opted for HRT so from then on I was getting regular checks and...Read Story
For 18 months I thought I had a food intolerance, or IBS as almost every time I ate I had stomach pains. The...Read Story
I was diagnosed with neuroendocrine cancer of my pancreas & liver February 2019. I had major Whipple surgery May 2019 at Freeman hospital Newcastle...Read Story
I was diagnosed in October 2015 with Stage IV Neuroendocrine Cancer. I had been experiencing intermittent and unexplained abdominal pain for five years...Read Story
We need the help of our global community to raise awareness to improve diagnostic times and the quality of life for NET patients around the world.
On November 10, help us spread the word
Know the symptoms. Push for diagnosis.