Survey of Challenges in Access to Diagnostics and Treatment for NET Patients (SCAN)

SCAN was launched worldwide on September 16th, 2019 and concluded on November 30th after 2 months and a half fieldwork.

During Sept-Nov 2019, 2359 NET patients and 436 healthcare professionals (HCPs) from 68 countries completed an online self-reported survey.

INCA, together with its 26 member organizations across 6 continents invited NET patients and healthcare professionals to SCAN the challenges in NET diagnostics, treatment and care.

SCAN was a global assessment:

  • among NET patients & healthcare professionals
  • by a self-administered online questionnaire
  • available in 14 languages: Arabic,  Bulgarian, Chinese, Dutch/Flemish,  French,  English,  German,  Hindi, Japanese, Italian, Portuguese, Russian, Spanish, Swahili
  • less than 15 minutes to complete


SCAN key measurements:

  • The availability of NET diagnostic tools
  • The level of access to NET treatments
  • The level of access to ongoing checks
  • The level of access to healthcare professionals
  • Out-of-pocket costs of NET treatment and care
  • The provision of supportive services
  • Leading healthcare issues NET patients face today

INCA would like to thank all its members as well as its partners: ENETS (European Neuroendocrine Tumor Society), NANETS (North American Neuroendocrine Tumor Society), APNETS (Asia-Pacific Neuroendocrine Society), CommNETs (Commonwealth Neuroendocrine Tumor Group), JNETS (Japan Neuroendocrine Tumor Society), CSNET (Chinese Study Group for Neuroendocrine Tumors), UICC (Union for International Cancer Control), EURORDIS (European Organisation for Rare Diseases), NORD (National Organization for Rare Disorders) and European Cancer Organisation and many others

We would also like to express our gratitude to all SCAN respondents for their time and trust in us.

Together, with the full responsibility of this knowledge, we will build a stronger NET community.

All Articles & Posters published thanks to SCAN data are uploaded here.