The Survey of Challenges in Access to Diagnostics and Treatments for NET Patients (SCAN) has concluded on November 30th!

SCAN has been running since September 16th and has received responses from 60 countries around the world. More than 2350 NET patients, family members, friends and caregivers shared their experiences, and assessed the quality of care received, also noting areas in need of improvement. Approximately 500 healthcare professionals recorded their viewpoints on the current state of NET healthcare.

What’s next? The collected data will be analyzed and processed, and we will start sharing insights in early 2020. Global data, as well as breakdowns by regions and countries, wherever possible, will give us valuable knowledge, which will help in the strive towards equitable access to healthcare for NET patients, no matter where they live.

With approximately 3000 respondents, this is the biggest global compendium of data about NETs so far. INCA would like to thank all of its member organizations, NET patient groups, NET patient advocates and supporters, as well as the medical societies around the world for their invaluable help in achieving this impressive coverage. We would also like to express our gratitude to all SCAN respondents for their time and trust in us. Together, with the full responsibility of this knowledge, we will build a stronger NET community.