Pheo Para Alliance (PPA) is proud to announce that “Patient-reported burden associated with pheochromocytoma/paraganglioma diagnosis” was recently published in Endocrine-Related Cancer 2024 Vol. 31, issue 6.
The Scan of Pheochromocytoma & Paraganglioma Experiences (SCOPPE) survey, conducted by Pheo Para Alliance, focused on exploring the patient voice to verify, educate, explore connections and provide strategic guidance was taken by 270 pheo para patients in mid-2022.
Special thanks to all of the contributors for making this possible, most notably Dr. Katherine I. Wolf and Dr. Lauren Fishbein.
