Stephanie Alband, MSBA, joins the Pheo Para Alliance with over 20 years of experience in the nonprofit industry. For the last ten years she has worked exclusively with rare disease organizations, including the Huntington’s Disease Society of America and Angioma Alliance. Her experience with her daughter’s rare illness has helped her better understand and successfully navigate the unique challenges faced by the rare disease community. Stephanie’s background in patient advocacy, education, and fundraising will ensure the Pheo Para Alliance is well poised to fulfill its mission.
This marks a monumental milestone in Pheo Para Alliance history. Stephanie’s experience empowering rare disease communities and bringing together patients, clinicians, and researchers will allow Pheo Para to dive deeper into accomplishing the mission of investing in research to accelerate treatments and cures and empowering patients, families, and medical professionals through advocacy, education and a global community of support.