NETs & Healthcare
Neuroendocrine tumor (NET) patients evaluated the healthcare received in the country they reside in at 3.5 on average in the SCAN survey. That is slightly above the mid-point on the scale from 1 (poor) to 5 (excellent). Healthcare professionals shared very similar evaluations.
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Neuroendocrine tumors (NETs) are complex neoplasms that require specific treatments and usually monthly ongoing follow-up. However, the SCAN survey data revealed that:
- Many countries do not have national healthcare plans that cover NETs. It is in Europe and Oceania that NET patient rights are upheld the most, although still below the optimum.
- 51% of NET patients living in countries of advanced economies claim that their country has a healthcare plan that covers NETs. This is the case for only 31% in emerging and developing economies
24% of NET patients living in advanced economies had no current out-of-pocket expenses related to their NET care, as everything was covered by state healthcare/insurance. This is the case for only 10% of the NET patients living in emerging and developing economies.
- In many countries leading treatments in NETs are not available to all according both to NET patients and healthcare professionals.
- Good quality of health services is a global challenge for NET patients.
- Huge disparities in healthcare coverage and treatment availability between countries of advanced and emerging economies.
- We need better and more inclusive healthcare plans and evidence-based policies for NETs.
- more availability of treatments;
- more specialized care needed;
- more healthcare professionals knowledgeable in NETs