NETs & the Healthcare Professionals’ Perspective

Healthcare professionals see there is a lack of NET experts and specialized medical centers globally. This leads to delayed diagnosis and poor patient treatment outcomes. We need to change this. Help us spread the word. Use a visual that best reflects your support in any of the 11 languages below and share it on social.

What have we learned from SCAN?

It is from the majority of NET patients that we learned that more than 2 medical professionals were involved in their diagnosis and these were primarily a surgeon (46%), a medical oncologist (40%), a GP (39%) and a gastroenterologist (39%)
The diagnostic test that actually led to the correct diagnosis was most often suggested by a gastroenterologist (20%) or a GP (19%) as 71% of NET patients were with gastroenteropancreatic NETs.
The medical professionals that are most actively involved in the ongoing monitoring of NET patient disease management were medical oncologists (60%) and GPs (44%) as per NET patient testimonials.

According to healthcare professionals globally, the leading issues for NET patients were:

Lack of access to reliable information about NETs (41%)
Slow processing of patient case documentation between the different experts or medical institutions (36%)
Insufficient funds to cover any costs related to NET management (34%)

We need more second-line healthcare professionals knowledgeable in NETs. Help us spread the word. #wescan