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NETs & the Healthcare Professionals’ Perspective



Healthcare professionals see there is a lack of NET experts and specialized medical centers globally. This leads to delayed diagnosis and poor patient treatment outcomes. We need to change this. Help us spread the word. Use a visual that best reflects your support in any of the 11 languages below and share it on social.

What have we learned from SCAN?

  • It is from the majority of NET patients that we learned that more than 2 medical professionals were involved in their diagnosis and these were primarily a surgeon (46%), a medical oncologist (40%), a GP (39%) and a gastroenterologist (39%)
  • The diagnostic test that actually led to the correct diagnosis was most often suggested by a gastroenterologist (20%) or a GP (19%) as 71% of NET patients were with gastroenteropancreatic NETs.
  • The medical professionals that are most actively involved in the ongoing monitoring of NET patient disease management were medical oncologists (60%) and GPs (44%) as per NET patient testimonials.

According to healthcare professionals globally, the  leading issues for NET patients were:

  • Lack of access to reliable information about NETs (41%)
  • Slow processing of patient case documentation between the different experts or medical institutions (36%)
  • Insufficient funds to cover any costs related to NET management (34%)

We need more second-line healthcare professionals knowledgeable in NETs. Help us spread the word. #wescan

Infographic in 11 Languages