NET Patient Network Ireland united NET patients and NET medical professionals for its 5th annual NET Patient Day on 18 November 2017 in Dublin. A wonderful sense of community could be felt among the 120 Irish NET patients and their family and friends, who have gathered for the day and the relationship with their NET healthcare professionals, proved to be very inclusive and built on partnership.
Prof. Donal O’Shea gave an overview of NETs and an update on St. Vincent’s University Hospital and the Centre of Excellence. Dr. Staffan Welin from Uppsala in Sweden talked about NET innovative treatments. Dr. Derek Power and Mr Críostóir Ó Súilleabháin from Cork spoke about NET treatments and services in their region. Prof. Dermot O’Toole discussed NETs in Ireland and how the national system is progressing. INCA Executive Director Teodora Kolarova presented the latest INCA research on Unmet needs in the global NET community, and reassured Irish patients that their challenges and issues are common to many people living with NETs around the globe. An open discussion followed to exchange insights from doctors’ and patients’ perspectives. The meeting closed with the remark of one of the NET patients: “Today I will walk out of this room feeling more confident that I know how to deal with my disease. Thank you for the true support you give us.”
Videos of the talks and Q&A session will be available on NET Patient Network’s YouTube channel in the next few weeks.