Michael Rosenberg is the Founder and President of MENETS (MENETS – Middle East Neuroendocrine Tumor Society), and INCA Boot Camp trainee.
Why did you enroll in the INCA Boot Camp?
The boot camp is a valuable reminder that 2020’s advocacy is becoming more of a science and requires more than the “personal touch”. Patient Engagement needs to be pursued via a variety of platforms suitable to the Patient and Patient population. In Israel this includes the fairly insular population groups of orthodox Judaism and Arabic speakers each with their own cultural differences.
Who do you perceive to be your partner in this effort to promote active patient involvement in NET research?
Our Israeli NEN specialists engage directly with their patients in drug trials. We have a small market with about 500 new NEN cases a year and we are well served by both the medical and pharma communities
The most important thing you learned from the monthly webinar.
Statistics need to be balanced with PRO reporting in order to address the ying / yang of advocacy. I need to work more with the statistical side.