In July the Middle East Neuroendocrine Tumor Society started the first Intensive Personalized Program for Daily Living with NENs. The three-day in-residence workshop is part of a four-month program. The program meets the patient and its caregiver together with a NET clinician, a dietitian, a nutritionist and a coach.
Four couples composed of a patient and a family member participated. MENETS is measuring the program effectiveness with the Adult Carer Quality of Life Questionnaire (AC-QoL) and an updated tool for patients.
“Seeing people standing straighter, eyes more open, and hearing stronger voices are a gift to us all. We are in the process of sourcing funding to run additional workshops in Israel this year and then offer them internationally.”, says Michael Rosenberg, MENETS Founder.