AMEND’s activities for 2019 have already begun with the planning and organisation for the upcoming patient films on multiple endocrine neoplasia type 2B (MEN2B, AKA MEN3). Thanks to a patient group grant from the UK’s Society for Endocrinology and members’ fundraising efforts, 3 films will be produced featuring 3 different MEN2B patients; baby Asher, teenage Ethan, and twenty-something Kristina, together with medical specialist input from Great Ormond Street Hospital for Children in London. Each film will explore how and when the stars were diagnosed, providing a moving contrast between early and late diagnosis, and how patients and their families deal with day-to-day life with MEN2B. The films will not only be informative for other patients, but will also aim to educate a range of different health professionals to encourage the earlier diagnosis that is so desperately needed for this patient community. The films are expected to be complete by April when they will be available free to view on AMEND’s website and YouTube channel.
- INCA at the Lung Cancer Europe AGM
- Pheo Para Alliance Hired First, Full-Time Executive Director
- Join the CNETS Canada 2019 National NET Patient Conference Livestream on April 6th
- European Cancer Organization (ECCO) Patient Advisory Committee (PAC) Discusses Priorities in Patient-Focused Multidisciplinary Cancer Care
- Update on Local Councils Project from NET Patient Foundation, UK