Mary Zoeller is participant in the INCA Boot Camp. She is a Group Leader in the Indiana Neuroendocrine and Carcinoid Cancer Group of the CICSC and represents NETRF at the INCA Boot Camp.

 Why did you enroll in the INCA Boot Camp, Mary?

I saw the Boot Camp as a fascinating and inspirational opportunity to meet advocates from all over the world, hear about their experience, and explore the commonalities that bind us together.  Learning from each other, and working together for the good of the community will expand our personal and collective knowledge and allow us to speak in a coordinated voice on behalf of all patients.

Who do you perceive to be your partner in this effort to promote active patient involvement in NET research?

I attend the Boot Camp on behalf of the NET Research Foundation, which is dedicated to supporting research to improve treatments and identify cures for NETs.  Their support of researchers all over the world has greatly expanded our knowledge of neuroendocrine tumors in ways that would not have happened otherwise. As a patient, I am so grateful for their work and the opportunity to work with INCA.

The most important thing you learned from the respective monthly webinar.

There are so many it is hard to choose.  Broadly, learning how research evolves from ideas to approved therapies benefiting patients.  Advocates for patient involvement must understand the process as well as the science and calculations involved in moving things forward. Beyond this, Boot Camp has provided examples of how many large patient advocate organizations have benefitted their respective communities.  I am sure this training will advance new partnerships and participation in NET research and patient care around the globe.