Kennedy Rotich is a Program Coordinator at the African Neuroendocrine Cancers Society (ANECS) and a participant in the INCA Boot Camp for Research Patient Advocates.
Why did you enroll in the INCA BOOT Camp, Kennedy?
My enrolling in the boot camp was triggered by immense lack of right and correct information on NET cancers; its diagnosis, existing treatment and management, in the community we are working with in Kenya.
Equipped with the knowledge from the INCA Boot Camp, it is my greatest hope that the same shall be replicated in the community, and more so, among the NET cancer patients whose involvement is very crucial in tackling the disease.
With the vast experience as a journalist and having worked on Public Health Advocacy in my community, I shall be filling the existing gap and strengthening the link between NET cancer patients, caregivers and clinicians.
Who do you perceive to be your partner in this effort to promote active patient involvement in the NET research?
AZNETS (ANECS) plays a significant role in this journey who despite the financial challenges, have been at the vanguard; initiating formation of support groups and organizations in Kenya and being in constant reach with the NET cancer patients. Public Health Officers too are playing a greater role in this journey.
I hold into hope that by the end of the boot camp, I shall have established partnerships and build a web of networks with my fellow advocates and other organizations.
The most important thing you learned from the webinars so far?
Equipping the NET cancer patients and the entire populace with right information is very crucial towards battling the disease. Networking with other cancer advocates and professionals from around the world, also provides exceptional opportunity for horizontal exchange of experience; an occasion to familiarize with good practices as a channel for advocacy and personal development.