Katie Golden, INCA Boot Camp participant, is Consumer Advisory Group Member and Patient Support Group Facilitator at the NeuroEndocrine Cancer Australia.
Why did you enroll in the INCA Boot Camp, Katie?
I enrolled in the INCA Bootcamp as I was excited about the opportunity to learn about research advocacy. I want to be able to help where I can with advocacy for awareness and in particular research which will help develop medicines that will be beneficial to NETs patients. I was also keen to meet patients and others in the NETs community from around the world who have a passion for all things NETs related. Many are from support groups from other countries so are in a similar position to myself and are keen to know more about research advocacy. New medicines, pathways and treatments are essential for NETs patients as so little has been done over recent years to come up with new treatments.
Who do you perceive to be your partner in this effort to promote active patient involvement in NET research?
Other Bootcamp participants and those involved in the NETs community worldwide, including the doctors and specialists are the people/partners we can work with to promote patient involvement. It is so good to know that we are a fairly united group throughout the world and the ground swell that can be created will give us so much more power to encourage so many patients across the world to get involved and help with NET research.
The most important thing you learned from the webinars so far.
Research is not simple. It is complex and I have developed such an amazing appreciating for the researchers and the lengths they go through to get funding and grants. Their research is so well thought out and the details they go to make me confident that we will see a breakthrough and get better and more effective treatments for patients. It’s great to know that globally we are all working towards the same outcomes, that we have access to amazing specialists, support groups and access to so many treatments. We need to encourage patients to help with clinical trials where appropriate.