Two of the INCA abstracts based on the findings of the Unmet Needs in the Global NET Community Initiative have been accepted for poster presentation:
– “Unmet needs in the global NETs patient community from the perspectives of patients, patient advocates and NET health professionals” – at the upcoming 2018 NANETS Annual Multidisciplinary NET Disease Symposium, October 4-6, in Seattle, Washington, USA.
– “Unmet needs in the management of neuroendocrine tumours (NETs): A global survey of patients, patient advocates and healthcare professionals ” – during the ESMO 2018 Congress, 19-23 October, Munich, Germany.
Furthermore, the abstract “Unmet needs in the global NETs patient community: an assessment of major gaps from the perspectives of patients, patient advocates and NET health professionals” has been accepted into the APNETS 2018 program as an oral presentation. The INCA President, Simone Leyden, who is also a convenor of the APNETS Conference, will be presenting the findings of the Unmet Needs initiative in Melbourne in the beginning of November.
INCA would like to thank again everyone involved in taking further this important initiative on addressing unmet needs for NET patients. Special thanks to NETRF who kindly funded the development of the surveys, white paper and all visual materials, which will soon be available in 7 languages.
Committed to be the global voice of NET patients, INCA is proudly anticipating to bring its knowledge to the major medical fora. We are looking forward to continue building bridges with our key collaborators in the NET community to collectively address the many challenges in securing a timely diagnosis and accessing optimal treatment and care.