The INCA Boot Camp for Research Advocates, managed by the INCA Research Committee, dedicated its first training session on July 15th to several topics of crucial importance.

A detailed presentation on how and why patients need to be involved in medicine development was given by Jan Geissler from Patvocates. It was clearly manifested that patient input and co-created clinical trials, services and info resources lead to wiser investment of limited resources through better trial design, more effective research and better data. A key source for information on the topic is the EUPATI website and its Toolbox on Medicines Development, which provides detailed descriptions of all the different concepts, processes and terms that are related to the medicine development process.

A profound overview of the history, pathogenesis and treatment of NETs was delivered by Prof. Rodney Hicks, MD, FRACP, FICIS, FAHMS, Director, Molecular Imaging and Therapeutic Nuclear Medicine, Co-Chair, Neuroendocrine Service, the Peter MacCallum Cancer Centre, Melbourne, Australia. The evidence-based therapies for NETs were showcased along with the most prominent clinical trials and promising therapies. Prof. Hicks openly discussed different therapies and plausible approaches when it comes to specific types of NETs.

The INCA Boot Camp participants were acquainted with the astonishing story of 9.5 years of ongoing treatment journey of the Australian NET patient Katie Golden. Her treatment pathway includes more than 10 different therapies: from monthly somatostatin injections to PRRT, TACE and SIRT, Immunotherapy, and more. A hard journey for a patient to go through. According to the INCA Boot Camp participants, many of these therapies are not even available in many countries. This is a reality that we need to change. #NETsBootCamp2020