For the first time Presidents of each neuroendocrine society around the globe were invited to join together at a meeting in Palma de Mallorca, Spain to discuss key topics from a global perspective. The first NET Leadership Workshop included representatives from: Asia Pacific (APNETS), China (CSNETS, CNETS), Australia/New Zealand/Canada (CommNETs), Japan (JNETS), North America (NANETS) and South America, as well as INCA. Each were given the opportunity to present their organization, their function and achievements, which was a learning experience for all. What was clear, is that each organization and those involved are passionate about improving the lives of NET patients and that each face similar issues no matter their geographic location.
The goal of the meeting was to look at opportunities for sharing pathways and collaboration. Topics discussed and debated were: the ENETs Centre of Excellence model (could this go global?); joint forces for patient activities; research pathways; education activities and culminating in the idea of a World NET Summit in 2020. It was a fantastic meeting with everyone putting their energy behind greater collaboration and working with patients, with the first project to be worked on being “closing the information gap”. The collation of patient information in multiple languages, for access by patients and clinicians dealing with NETs. This project is already underway, and we look forward to more meetings like this and engaging our global community further.