Gastroenteropancreatic neuroendocrine tumor (GEP NET) patients share disturbing experiences with their diagnostic process and treatments received globally.
United we can reach a much broader audience to raise awareness, hopefully leading to faster diagnosis for future patients. Visual materials in 11 languages are ready for you to download below. All support in promoting this topic is much appreciated.
- Almost half of GEP NET patients are initially misdiagnosed with more common ailments like irritable bowel syndrome (IBS), gastritis or anxiety before receiving the correct diagnosis.
- The process of diagnosing a patient with GEP NET can take up to 6 years. By the time a correct diagnosis is received, many patients have stage 4 cancer.
- 2 and more specialists are involved in the correct diagnosis, while there is a lack of enough healthcare specialists, knowledgeable in NETs.
Newer specialized tools for monitoring and diagnostics are not available for more than one-third of GEP NET patients globally.
Help us raise symptom awareness about NETs #wescan #letstalkaboutnets
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