by Kristina Slavova | Apr 15, 2019 | Access to Optimal Care, All News
A new explanatory video on PRRT has just been released by APTED for the French-speaking community. The video is published on APTED’s YouTube Channel and shows in just 3 minutes how PRRT works. Subtitles could be easily added in any language. Watch the full video...
by Kristina Slavova | Apr 10, 2019 | Access to Optimal Care, All News
The Carcinoid Cancer Foundation is excited to announce the launch of their new website dedicated to providing information about PRRT and the Gallium-68 PET/CT scan. This site also includes an interactive map to locate facilities where PRRT and/or the Gallium-68 PET/CT...
by Kristina Slavova | Apr 8, 2019 | All News, Awareness and Information
CNETS Canada’s 2019 National NET Patient Conference brought together over 175 NET patients, patient leaders, caregivers and their families from across Canada. We are delighted to share that the 2019 National NET Patient Conference presentations are now available on...
by Kristina Slavova | Apr 4, 2019 | All News, Awareness and Information
Stephanie Alband, MSBA, joins the Pheo Para Alliance with over 20 years of experience in the nonprofit industry. For the last ten years she has worked exclusively with rare disease organizations, including the Huntington’s Disease Society of America and Angioma...
by Kristina Slavova | Apr 3, 2019 | All News, Awareness and Information
CNETS Canada 2019 National NET Patient Conference could be joined remotely via a Livestream on April 6th, 2019 from 8:30 am – 4:30 pm EST Here are some useful steps that can guide you to launch the livestream. Click on the following link:...
by Kristina Slavova | Mar 30, 2019 | All News, INCA
INCA took part in a very productive and insightful meeting of the European Cancer Organization (ECCO) Patient Advisory Committee (PAC) on 25 March in Brussels, Belgium. Ten leaders of umbrella cancer patient organizations in Europe and beyond interacted in an open...
