Sep 16, 2019 | All News, INCA
In order to better understand the challenges to provision of optimal care to neuroendocrine tumor (NET) patients, today the International Neuroendocrine Cancer Alliance launches SCAN – a global survey designed to capture both NET patients’ and healthcare...
Sep 3, 2019 | All News, Uncategorized
Victory NET came about purely by chance, when a random group of people were brought together by loss and sadness and yet, in their pain and suffering, gave rise to new hope. The bond they forged and the dynamic it generates has made it possible to envisage a better...
Sep 1, 2019 | Access to Optimal Care, All News
In harmony with one of its 3 key strategic pillars, INCA has developed a new online survey, aiming to shine a light on the challenges NET patients around the globe face in terms of access to diagnostics and treatment. Following the pilot phase of improvements and...
Aug 31, 2019 | All News, Awareness and Information
“Blush the Zebra” is a warm and tender story about being sick. The author, Frank Geleyn, а professional Belgian writer and a NET patient himself, wrote the story to comfort fellow patients, give them strength, but also to raise awareness about neuroendocrine tumors, a...
Aug 30, 2019 | Access to Optimal Care, All News
The NET Patient Foundation had its inaugural meeting on the 29th August which was engaging, full of energy and new ideas. The team at the NPF felt reinvigorated and inspired by the drive and commitment each person bought to the table! The NPF Ambassadors will be...
Aug 29, 2019 | All News, Awareness and Information
The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be...
