by Kristina Slavova | Apr 19, 2019 | All News, INCA
INCA Executive Director Teodora Kolarova presented the success story of the INCA Unmet Needs Survey at the Lung Cancer Europe Annual General Meeting on April 13, 2019 in Geneva. Over 25 representatives of national lung cancer patient groups from Europe were impressed...
by Kristina Slavova | Apr 4, 2019 | All News, Awareness and Information
Stephanie Alband, MSBA, joins the Pheo Para Alliance with over 20 years of experience in the nonprofit industry. For the last ten years she has worked exclusively with rare disease organizations, including the Huntington’s Disease Society of America and Angioma...
by Kristina Slavova | Apr 3, 2019 | All News, Awareness and Information
CNETS Canada 2019 National NET Patient Conference could be joined remotely via a Livestream on April 6th, 2019 from 8:30 am – 4:30 pm EST Here are some useful steps that can guide you to launch the livestream. Click on the following link:...
by Kristina Slavova | Mar 30, 2019 | All News, INCA
INCA took part in a very productive and insightful meeting of the European Cancer Organization (ECCO) Patient Advisory Committee (PAC) on 25 March in Brussels, Belgium. Ten leaders of umbrella cancer patient organizations in Europe and beyond interacted in an open...
by Kristina Slavova | Mar 29, 2019 | All News, Awareness and Information
In October 2018, Hackney Council (A London Borough) unanimously passed a motion on rare and uncommon cancer. On the 28th March, City and Hackney Clinical Commissioning Group and Hackney Council, held a joint “rare and uncommon cancer” seminar with presentations and...
by Kristina Slavova | Mar 28, 2019 | All News, Awareness and Information
The Pheo Para Alliance in partnership with Upstate Medical University is presenting the 2019 Pheo Para International Conference on June 6-8, 2019 at the Central New York Biotech Accelerator in Syracuse, New York. The event is open to patients and families, healthcare...
