COVID-19 and MEN Research

COVID-19 and MEN Research

AMEND has developed a patient questionnaire for people with multiple endocrine neoplasia disorders (GenNETs) who HAVE HAD Coronavirus. The survey can be completed by patients who have recovered, or by relatives or health professionals for anyone who may sadly have...
INCA Launches SCAN on September 16th

INCA Launches SCAN on September 16th

In harmony with one of its 3 key strategic pillars, INCA has developed a new online survey, aiming to shine a light on the challenges NET patients around the globe face in terms of access to diagnostics and treatment. Following the pilot phase of improvements and...
Phaeo/Para Crisis Card from AMEND

Phaeo/Para Crisis Card from AMEND

Thanks to an offer from two endocrinologists at St Bartholomew’s Hospital in London, AMEND has produced a Phaeochromocytoma & Paraganglioma Crisis Card.  A phaeo/para crisis is a possibility for anyone with either or both of these types of functioning tumors. The...
Updates on PRRT in New Zealand

Updates on PRRT in New Zealand

Unicorn Foundation NZ  is continually working on behalf of its patient community to improve access to medicines and treatments in NZ. Recently the National Services Governance Group endorsed the PRRT application to proceed to service design, which is the first of...