Aug 28, 2024 | Access to Optimal Care, All News, Awareness and Information, Uncategorized
Von Hippel-Lindau (VHL) patients and NeuroEndocrine Cancer Australia (NECA) celebrated across Australia this month when the only known treatment for VHL was recommended for listing as part of Australia’s Pharmaceutical Benefits Scheme (PBS). Until now access to...
Aug 28, 2024 | Access to Optimal Care, All News, Awareness and Information, Research and Clinical Trials
Listen to the latest LACNETS podcast on “NEN Treatments: Focus on Immunotherapy,” featuring Dr. Jennifer Eads. Learn about immunotherapy and how effective it is for neuroendocrine neoplasms (NENs). Dr. Jennifer Eads of Penn Medicine answers common...
Jul 29, 2024 | Access to Optimal Care, All News, Awareness and Information
The NeuroEndocrine Cancer Australia (NECA) NET nurse service often guides patients through the PRRT procedure as part of their Telehealth support service. And now NECA created and launched a new explainer video that can be viewed on demand. And the demand has been...
Jul 29, 2024 | Access to Optimal Care, All News, Awareness and Information
The collaboration between It.a.net & Net Italy ETS continues and on 10 July the second joint webinar on NETs was organized for patients. No lectures, no presentations: the aim of the event was to allow patients with pulmonary NETs to talk and ask questions...
Jul 23, 2024 | Access to Optimal Care, All News, Awareness and Information, Research and Clinical Trials
Pheo Para Alliance (PPA) is proud to announce that “Patient-reported burden associated with pheochromocytoma/paraganglioma diagnosis” was recently published in Endocrine-Related Cancer 2024 Vol. 31, issue 6. The Scan of Pheochromocytoma & Paraganglioma Experiences...
Jul 5, 2024 | Access to Optimal Care, All News, Awareness and Information
Join the LACNETS Health & Wellness Virtual Retreat on Saturday, July 27th, 2024, from 8:30 AM to 12:15 PM PST. The theme of the retreat is “Radical Acceptance.” Accepting a diagnosis of cancer for yourself or a loved one can be incredibly difficult to...