Stephanie Alband

President, International Neuroendocrine Cancer Alliance (INCA)

Biography

Stephanie Alband, MSBA, joined Pheo Para Alliance in March of 2019. She has over 20 years of experience in the nonprofit industry, with ten years working exclusively for rare disease organizations, including the Huntington’s Disease Society of America and Angioma Alliance. Her experience with her daughter’s rare illness has helped her better understand and successfully navigate the unique challenges faced by the rare disease community. Stephanie’s experience in patient advocacy, education, and fundraising is instrumental in growing Pheo Para Alliance to support the patient community and find better treatments and a cure for PPGL.

She lives in San Diego county with her husband and two girls. She enjoys hiking and the outdoors.