Simone Leyden

Immediate Past President, International Neuroendocrine Cancer Alliance (INCA)


Simone Leyden co-founded the Unicorn Foundation Australia in 2009 after seeing a huge disparity in treatment and support options for rare cancers, compared to more common cancers through the diagnosis of her sister Kate with pNET. Simone has a Bachelor of Business Management/ Marketing from Monash University, and after 12 years in various senior roles in advertising and publishing, took on the full time role as Chief Executive Officer of the Unicorn Foundation in 2011. In her role as CEO, Simone advocates for greater access to treatments and diagnostics, raises funds for the NET Nurse Support Service and research, produces resources and education materials about Neuroendocrine Tumours (NETs), and raises awareness about NET cancers within the medical community and general public. Simone is an active member of many associations including the current President and Communications Chair of the International Neuroendocrine Cancer Alliance (INCA), standing committee member of Australia’s National Patient and Cancer Organisation Committee, and participant in many Health Technology Assessment (HTA) committees including HTAi patient panel. Simone is passionate about improving the lives and outcomes of NET Cancer and rare cancer patients around the world, and bringing the patient voice to the forefront of research.