I have dedicated the past nineteen years of my career with an aim to improve the care and outcomes for neuroendocrine cancer patients. As the first NET CNS in the UK, and setting up the first UK wide charity, I have experienced extensive challenges, alongside a significant sense of achievement. My passion is to see eight strategic priorities in the NET field achieved: the protection of our world class service, improving impact and outcomes for patients who follow a less common pathway, establishing patient experience as being on a par with clinical effectiveness and safety, promoting the necessary investment to deliver a modern and high quality service for NET patients, both in the acute and community setting, the provision of standardised useful and accurate patient information, a significant increase in the research, education and awareness in NETs, ensuring commissioning processes are fit for purpose and that NET community has the attention that is the right of all cancer patients.
I started work as Neuroendocrine Nurse Specialist at the Royal Free Hospital in London in 1999. A frontline nursing service was set up and I coordinated the day to day running of that service incorporating a caseload of around 700 patients. I co-founded the NET Patient Foundation, whilst working at the Royal Free and then transferred to the NET Patient
Foundation, to take up a full time position for the charity, based on the engagement and
apparent need of a community service.
The charity has a vision of a world in which people know how to recognise, diagnose, treat, care for, and ultimately, cure patients with neuroendocrine cancer.
The Foundation has the following aims:
- To provide support, education and information to anyone affected by neuroendocrine
- To advocate for neuroendocrine cancer patients so they may achieve the best
- To encourage standardised care for all neuroendocrine cancer patients.
- To provide community supportive care to patients and their carers or family
- To raise awareness of neuroendocrine cancers throughout the UK.
- To raise funds for clinical and translational research projects.