The Role of Patient Support Groups in Neuroendocrine Neoplasms
INCA is excited to announce that its review article “The Role of Patient Support Groups in Neuroendocrine Neoplasms”, co-authored by Teodora Kolarova and Catherine Bouvier, has been accepted for publication in Current Oncology Reports. The purpose of the review is to...
NETRF Know Your NETS Conference Videos
Neuroendocrine Tumor Research Foundation presented its Know Your NETs Virtual Conference in October. The conference featured in-depth, practical information on the day-to-day challenges faced by those living with NETs. Topics included treatment sequencing, surgical...
French Artist Raises Awareness about Lung NETs
This November, APTED France, the online radio Patients together and other online media featured the initiative Poumonoprix (The price of lungs) of the French NET patient, Camille Eseyan, a 29-years old artist and creative designer, diagnosed with lung NETs in the...
Mark McDonnell, NET Patient Network – Ireland: As patients, we need to work together to ensure our voices are heard and that we are involved and engaged in all stages of research.
Mark McDonnell is the Chairperson of NET Patient Network, Ireland and an #INCABootCamp participant. Why did you enroll in the INCA Boot Camp? I believe very strongly in the need for patient involvement at the core of research that is ultimately designed to better or...
Mona Hamilton, Victory NET Foundation: The Boot Camp Gives A Better Understanding of The Patient Advocacy World
Mona Hamilton, President of the Victory NET Foundation, Switzerland and participant in the #INCABootCamp Why did you enroll in the INCA Boot Camp? We enrolled in the INCA Boot Camp, to receive a better understanding of the patient advocacy world, to see if our...
Ron Hollander, INCA Honorary Member: I believe the time is ripe for us to work with all of the key stakeholders in NET research
Ron Hollander, INCA Honorary Member, INCA Past-President and participant in the #INCABootCamp Why did you enroll in the INCA Boot Camp? On behalf of INCA, I have had the opportunity to convene and/or participate in the kinds of collaborative meetings that lay the...
2020 Maureen Coleman Award Recipients
The Canadian Neuroendocrine Tumour Society (CNETS) announced the recipients of the Seventh Annual 2020 Maureen Coleman Award. These are Sharon Needham and Dr. Daniel Rayson. This Award recognizes exemplary dedication to the NET patient community and is open to...
MENETS Released Its NET Nutrition Ebook in Arabic חדש: ספר תזונה למטופלים עם גידולים נוירואנדוקרים
The Middle East Neuroendocrine Tumor Society (MENETS) released its eBook on NET nutrition in Arabic, following its publication in Hebrew and Russian. The three language versions of the NET diet books focused on the Mediterranean diet are now launched and made...
Australian GP Education Module
This month, NeuroEndocrine Cancer Australia is very proud to have launched a Royal Australian College of General Practitioners (RACGP) accredited online education course for Australian GPs. This course is worth 40 Continuing Professional Development (CPD) points for...
Pheo Para Alliance Announces Launch of Center of Excellence Program to Improve Access for Those With Pheo Para
Pheo Para Alliance is pleased to announce the launch of its Center of Excellence Program, which will provide an environment where patients receive the best possible pheochromocytoma (pheo) and paraganglioma (para) care through a geographically diverse network of...