Zebras Never Give Up! Les zèbres ne lâchent pas!
The #leProjetGR20 was a huge success – a NET patient hiked 180 kms of the hardest trails in Corsica, France on his own! Les zèbres ne lâchent pas ! Diagnostiqué porteur d’une TNE dans les intestins en juin 2019, j’ai été opéré en août 2019. Relativement vite remis sur...
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NeuroEndocrine Cancer Australia Excited to Announce the Trial Phase of the Much Anticipated Online Resource INFO4NETs.
Developed in collaboration with Peter MacCallum Cancer Centre (a recognized Centre of Excellence for neuroendocrine cancer treatment), INFO4NETs will provide newly diagnosed patients with access to the resources they need in one easy to use platform. The trial phase...
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CCF Luncheon with the Experts Facebook Live Event With Catherine Bouvier
The Carcinoid Cancer Foundation featured Catherine Bouvier, Co-founder and CEO of Neuroendocrine Cancer UK and INCA President, as a guest in their Luncheon with the Experts Facebook Live event on July 30. The Facebook Live event was hosted by Rain Bennett, a longtime...
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2 Live Webinar Series for Pheo & Para in August
This August, the Pheo Para Alliance will hold two live webinar series with experts to discuss key pheo para topics. Attendance is free upon registration at pheopara.org. These hour-long webinars will provide an opportunity for the community to ask questions live or...
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INCA Manuscript on French Patient-Reported Experience of Diagnosis, Management and Burden of Neuroendocrine Tumors to be Published in The International Journal of Endocrine Oncology
The first Global Survey of NET patients, a collaboration between INCA and Novartis, continues to have an impact worldwide with results published in medical journals. We are excited to announce that the manuscript, “French Patient-Reported Experience of Diagnosis,...
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NET Nutrition eBook in Hebrew, Arabic, and Russian
The Middle East Neuroendocrine Tumor Society (MENETS) has been working since 2019 on developing a NET Nutrition eBook in Hebrew, Arabic, and Russian. The book incorporates localization for the Mediterranean region. Its Hebrew version will be released on August 10th,...
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SCAN Data Going Local
The SCAN project, managed by the INCA Access Committee, collected vast and robust global data on the many challenges in access to diagnostics and treatment of neuroendocrine cancer patients. SCAN became the biggest global compendium of data about NETs to date, with...
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SCAN Healthcare Quality Evaluation at ESMO 2020
INCA is delighted to share that the abstract Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) – Healthcare Quality Evaluation was accepted for e-poster presentation (display) at the ESMO Virtual Congress 2020,...
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INCA Boot Camp for Research Advocates July Session
The INCA Boot Camp for Research Advocates, managed by the INCA Research Committee, dedicated its first training session on July 15th to several topics of crucial importance. A detailed presentation on how and why patients need to be involved in medicine development...
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Pheo Para Awareness Week – August 23-29
Join the Pheo Para Alliance as they hold their 1st annual week-long, international campaign dedicated to raising awareness for pheochromocytoma and paraganglioma. The campaign’s goals are to: 1. Inspire & empower pheo para constituents to tell their story 2. Raise...
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