Pheo Para Awareness Week – August 23-29
The Pheo Para Alliance launched the inaugural campaign to raise awareness for pheochromocytoma (pheo) and paraganglioma (para), rare neuroendocrine tumors, from August 23 – 29. The objectives of this week-long campaign were to inspire & empower pheo para constituents...
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HOOFING IT Across Canada for Neuroendocrine Cancer Research!
Between July 1st and September 7th, the Canadian neuroendocrine cancer community is working together in an effort to raise $100,000 in the 2020 Neuroendocrine cancer research fundraising campaign, HOOFING IT Across Canada for Neuroendocrine Cancer Research! After 45...
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AMEND Launches New PPGL GenNET Group
During the inaugural, international Phaeo Para Awareness Week (24-30 August), AMEND were delighted to launch a brand new group identity for patients and families in the UK affected by phaeochromocytoma and paraganglioma tumors and syndromes. Phaeo Para Support UK is...
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Global Disparities in Quality Healthcare for NETs at ASCO Quality Care Symposium
INCA is pleased to share that the ASCO Quality Care Symposium Program Committee accepted INCA’s abstract “Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) – Global Disparities in Quality Healthcare for NETs”...
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INCA Research Chair and NeuroEndocrine Cancer Australia CEO Co-Authors Consensus Guidelines on LUNG NETs
INCA Research Chair and NeuroEndocrine Cancer Australia CEO, Simone Leyden, was honoured to be an author on a recently published consensus guideline in the esteemed Journal of Thoracic Oncology along with colleagues from CommNETs (Commonwealth Neuroendocrine Tumour...
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Join in World NEN Lives 2020 congress
World NEN Lives 2020 congress will be held first time this September 23-24 virtually via ZOOM. This congress is designed to showcase treatment options and ways to live better with and around NENs. The speakers include some of the top NEN world specialists as well as...
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AZNETS Will Become ANECS to Spread Neuroendocrine Tumors Information Throughout Africa
(For English, see below) African Zebra Cancer Network Support (AZNETS), hapo awali ikisajiliwa kama shirika la jamii lililokuwa na eneo ndogo la utumishi njini Kenya sasa liko katika mchakato wa mwisho ya kubadilisha jina lake kuwa AFRICAN NEUROENDOCRINE CANCERS...
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Potential Prognostic NET Biomarker Identified in Published Results in NETRF-Funded Study
As a part of a 2018 NETRF Pilot Award, Justin Annes, MD, PhD, Stanford University, studied the levels of an enzyme called PAM (short for Peptidylglycine α-amidating monooxygenase) in primary NET tissue specimens donated by 109 patients between 1992-2013. The...
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INCA at NORD Summit 2020
In 2019, the Survey of Challenges in Access to Diagnostics and Treatment for NET Patients (SCAN), championed by International Neuroendocrine Cancer Alliance (INCA), mobilized unprecedented global NET community involvement, increased social media engagement 50-fold,...
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Swedish Drug Start-Up Gives Shares to Its Donor – Victory NET Foundation
A Swedish company has granted 5 percent of its shares to the Victory NET Foundation, which was at the center of a crowdfunding campaign to develop a potential medicine for neuroendocrine cancer. This offers the foundation the prospect of revenues from dividends or the...
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