Unicorn Foundation Leads NETs Awareness Efforts in Australia
Unicorn Foundation HQ has been busy this month with counting, packing and sending out World NET Cancer Day cup packs to over 50 cafes, hospitals, sporting clubs and other venues all around Australia. A huge thanks to everyone who has helped with this campaign! Don't...
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INCA Poster “Unmet needs in the global NETs patient community from the perspectives of patients, patient advocates and NET health professionals”at NANETS
The 2018 North American Neuroendocrine Tumour Society (NANETs) Annual Multidisciplinary NET Disease Symposium, October 4-6, in Seattle, Washington, was notably underlined by the drive of collaboration across the globe. Ron Hollander, INCA Immediate Past President and...
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INCA Presents its Unmet Needs Initiative in 7 Languages and Across Key Medical Conferences
INCA White Paper on Unmet Needs in the Global Patient Community and the full set of infographics and motion graphics illustrating its results are now available in 7 languages: Chinese (Mandarin), German, French, Japanese, Italian, Russian and Spanish. In 2017, INCA...
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NET Patients and Supporters Will Raise Awareness at Medical School Across the UK
As part of the NET Patient Foundation NET Cancer Day activities, NET patients and their supporters will be taking their stories and experience to medical schools across the UK. Armed with relevant literature and giveaways, they are ready to raise awareness of NETs to...
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AMEND Makes Sure the Patient Voice Is Heard
There is currently a great deal of patient representation activity in the area of neuroendocrine tumour syndromes and endocrine tumours for AMEND. AMEND is participating in developing a UK Consensus Statement on the use of tyrosine kinase inhibitors (TKIs) in...
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Team Zebra Toronto Raises $60,000 for NET Cancer Research
Congratulations to the amazing Team Zebra Toronto for raising just under$60,000 for NET cancer research in Canada, at the 2018 Scotiabank Toronto Waterfront Marathon. The cold weather didn’t stop Team Zebra members who participated in the 5K (running and walking) and...
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INCA Poster on Unmet Needs in NETs Wins Best Poster Award at ESMO 2018
INCA poster ‘Unmet needs in the management of neuroendocrine tumours (NETs): A global survey of patients, patient advocates and healthcare professionals’, won the Best Poster Award at the European Society for Medical Oncology 2018 Congress. Held under the tagline...
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How to Stay Positive with Neuroendocrine Cancer
"How to Stay Positive with Neuroendocrine Cancer" is the latest video in Carcinoid Cancer Foundation’s 50th anniversary series. Beth asked the doctor to remove her appendix while having surgery on her gallbladder. She had a feeling something bigger was going on...she...
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NET Research Foundation: Targeting Single Cancer Cells with PRRT to Prevent Metastasis
Despite the effectiveness of Peptide Receptor Radionuclide Therapy (PRRT) to prolong survival of those with neuroendocrine tumors (NETs), many patients will see their cancer spread a few years later. To help discover technology capable of more accurately killing...
read more$10 Million Funding for Rare Cancers
This week Greg Hunt MP announced a further $10 million for funding rare cancers including a Merkel Cell Carcinoma Clinical Trial through the Medical Research Future Fund. Australia has the highest incidence of this rare neuroendocrine skin cancer in the world, so we...
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