INCA on the Crucial Importance of Collaboration in the Latest ESE News
INCA’s position on the patient advocacy role has been published in the latest autumn edition of the reputable European Society of Endocrinology (ESE) newsletter. In this feature article, INCA Executive Director, Teodora Kolarova, elaborated on the importance of...
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CNETs Canada Closes 2018 with an Interactive Webinar for Patients
Just before the end of the year, CNETS Canada organized an interactive webinar on the topic of rectal NETs Äll you need to know about Rectal NETs". Guest speakers Dr. Shereen Ezzat and Dr. Sylvia Asa gave comprehensive presentations on rectal NETs followed by an open...
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APTED Launched a Brand New NET Patient-Oriented Website
Since the end of 2018, the French speaking NET community has its own space to check for full information and latest updates about NETs. The website TNEinfos has been developed by APTED with the support and expertise of doctor Julien Forestier. TNEinfos presents easy-...
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AMEND to Support a New RET Research Collaborative Network
AMEND are delighted to be providing administrative and organisational support to the convenors of a new and exciting RET Research Collaborative Network, called RET@CRICK, whose inaugural meeting will be held at The Francis Crick Institute in London on 10th June,...
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CCF’s Life Is a Gift
CCF’s 50th anniversary video series continues with “Life is a Gift.” Mark was only 11 years old when he was diagnosed with lung neuroendocrine cancer. Here's how life changed for this husband and dad who is now in his thirties. Watch the...
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NET Patient Foundation Attended the UKINETs 16th Annual Conference
December is the month for the UKINETs Conference - one last push before the wind down to the Christmas holidays. The day was focused on educating and stimulating discussion on research amongst the many specialities involved in the care of patients with Neuroendocrine...
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INCA and ENETS Joined Efforts to Move NETs Higher on the EU Agenda
December 4th was a busy day of outreach meetings in Brussels to draw attention to NET as a rare form of cancer that has never had any special focus or dedicated funding within the EU. INCA and ENETS took the chance to introduce NETs to Members of the European...
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$40,000 for Innovative Research for 2019 Thanks to the Walk in USA’s Capital Region
On November 10th, World NET Cancer Awareness Day, 177 walkers, 18 volunteers, and many family dogs turned out for the first-ever Washington DC Walk for Carcinoid Cancer. Sanjiv Jain, CEO, eGlobalTech organized a 2-mile fundraising walk to honor his late wife, Sonya...
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INCA Makes the World Talk About NETs
This year #LetsTalkAbout NETs reached millions around the globe: INCA’s 2018 NET Cancer Day campaign culminated in the level of engagement and support reached. The combined value of impressions across the three key social media platforms – Twitter, Facebook and...
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Unicorn Foundation Australia hosts Asia Pacific Neuroendocrine Tumor Society (APNETs) on November 9-11 in Melbourne
It was a great honour to play host to the 6th annual Asia Pacific Neuroendocrine Tumour Society (APNETs) meeting in Melbourne in November at the Melbourne Exhibition and Convention Centre (9th – 11th). APNETs, founded in 2013 by a group of healthcare professionals who...
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