NET Patient Will Hike the Hardest Trails in France to Raise Funds for NET Research
Clement was diagnosed with NETs in the summer of 2019 after losing 10 kg in just 3 weeks. He underwent surgery and today, one year later, his condition is being closely monitored. On the occasion of his first year as a cancer survivor, Clement decided to run a special...
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Unicorn Foundation New Zealand Welcomes New CEO
Unicorn Foundation NZ's board and staff recently introduced Dr. Michelle Sullivan as the organization’s new CEO. Dr. Michelle Sullivan’s wealth of experience aligns well with the strategic goals of Unicorn Foundation NZ and the team is excited about what her energy...
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First ENETS Centre of Excellence in Spain
Hospital Universitari Vall d´Hebron together with Vall d’Hebron Institute of Oncology (VHIO) have recently been recognized as Center of Excellence by the European Neuroendocrine Tumor Society (ENETS). This is the first center in Spain to join the large group of ENETS...
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Let’s Walk For NETs
Let's Walk for NETs! was a six-week virtual walk campaign developed by NeuroEndocrine Cancer Australia to help keep patients, carers, healthcare front-liners and the general public motivated during these unprecedented times. The challenge started on April 10 and...
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CCF Facebook Live on COVID-19: Your Health and Safety
In May, the Carcinoid Cancer Foundation continued its Facebook Live Series on COVID-19: Your Health and Safety with the special contribution of the neuroendocrine tumor (NET) expert Lowell Anthony, MD, Chief of the Division of Medical Oncology at the UK Markey Cancer...
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AMEND Launches SDH Syndromes Films
On 16th May, AMEND launched a set of films about SDH Syndromes (genetic neuroendocrine tumor syndromes). The films, Introducing SDH syndromes (Diagnosis, Treatment and Future), explore the experiences of three patients with an SDH syndrome who were diagnosed...
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In memoriam – Tore Åsbu
It is with a most heavy heart that we announce that our dear friend and amazing colleague Tore Åsbu sadly passed away on May 9, Saturday at Haukeland Hospital in Norway. He was 63 years old. Tore has been involved in INCA since the very first meeting of the...
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The Healing Power of Music
Tom Bajoras, Los Angeles music producer and composer living with a pancreatic neuroendocrine tumor, is at work making music. But not in the usual way. The West Coast musician, composer, and producer is seeing setbacks in ongoing projects due to physical distancing....
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Support Groups: NCUK Piloting New Models of Working
The NCUK Patient Information & Support Nurse Specialist, Nikie Jervis, has been working hard to host online virtual Natter meetings each week. This is proving to be a great success and gathering speed each week. NCUK has currently run 12 meetings with 40 more in the...
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NeuroEndocrine Cancer Australia Virtual Let’s Walk for NETs! Campaign
Let’s Walk for NETs! is a 6-week virtual walk developed by NeuroEndocrine Cancer Australia to help keep patients, carers, healthcare front-liners and the general public motivated during these unprecedented times. Participants are free to join at any time. The...
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