September 16 – We SCAN!
In order to better understand the challenges to provision of optimal care to neuroendocrine tumor (NET) patients, today the International Neuroendocrine Cancer Alliance launches SCAN - a global survey designed to capture both NET patients’ and healthcare...
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The Victory NET Foundation in Focus
Victory NET came about purely by chance, when a random group of people were brought together by loss and sadness and yet, in their pain and suffering, gave rise to new hope. The bond they forged and the dynamic it generates has made it possible to envisage a better...
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INCA Launches SCAN on September 16th
In harmony with one of its 3 key strategic pillars, INCA has developed a new online survey, aiming to shine a light on the challenges NET patients around the globe face in terms of access to diagnostics and treatment. Following the pilot phase of improvements and...
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Blush the Zebra – NET Patient Dedicates a Story to All NET Patients
“Blush the Zebra” is a warm and tender story about being sick. The author, Frank Geleyn, а professional Belgian writer and a NET patient himself, wrote the story to comfort fellow patients, give them strength, but also to raise awareness about neuroendocrine tumors, a...
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NPF Ambassadors: Bridging the Patient Voice Into Everything NPF Does
The NET Patient Foundation had its inaugural meeting on the 29th August which was engaging, full of energy and new ideas. The team at the NPF felt reinvigorated and inspired by the drive and commitment each person bought to the table! The NPF Ambassadors will be...
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Mark Your Calendars – October 1 is Rare Cancer Day!
The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be...
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Unicorn Foundation Brisbane NET Patient Forum
On August 27th, the Unicorn Foundation Australia hosted a free forum for people affected by neuroendocrine tumors, friends and families as well as interested healthcare professionals. The forum gathered together more than 80 NET patients. Attendees were able to join...
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Pheo Para Alliance Launches Facebook Live Webinar Series
The Pheo Para Alliance invites everyone interested to join for the first episode of Facebook Live Webinar series where patients and their families will have an opportunity to tune in and ask a pheo para expert questions via Facebook Live. The inaugural event will...
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Playa d’en Fossa: A Combination of Entertainment and Charity
Playa d’en Fossa is a project born in 2008, conceived by a group of friends sharing both passion for music and the wish to spend time together without forgetting those who unfortunately cannot enjoy their lives to the fullest. This group of young people, living in a...
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The NET Research Foundation Launches Neuroendocrine Tumor Podcast
The NETRF is pleased to introduce the NETWise Podcast. More intimate and portable than a series of videos and more in-depth and narratively engaging than brochures or booklets, podcasts can present information directly from the voices of leading experts in a way that...
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