NeuroEndocrine Cancer Australia Celebrates Groundbreaking PBS Recommendation of Life-Changing Treatment for Von Hippel-Lindau (VHL) Patients
Von Hippel-Lindau (VHL) patients and NeuroEndocrine Cancer Australia (NECA) celebrated across Australia this month when the only known treatment for VHL was recommended for listing as part of Australia’s Pharmaceutical Benefits Scheme (PBS). Until now access to...
NET Clinical Trials Explained for NET Patients in Taiwan at a TNEPTCA Seminar
Taiwan Neuroendocrine Tumor Patient Care Association (TNEPTCA) hosted a seminar on August 3, 2024 in Taipei, focused on clinical trials related to neuroendocrine tumors (NETs). Dr. Nai-Jung Chiang from Taipei Veterans General Hospital provided a clear explanation of...
New Podcast from LACNETS on NEN Treatments and Focus on Immunotherapy
Listen to the latest LACNETS podcast on "NEN Treatments: Focus on Immunotherapy," featuring Dr. Jennifer Eads. Learn about immunotherapy and how effective it is for neuroendocrine neoplasms (NENs). Dr. Jennifer Eads of Penn Medicine answers common questions about...
NeuroEndocrine Cancer Australia (NECA) Releases New PRRT Treatment Explainer Video
The NeuroEndocrine Cancer Australia (NECA) NET nurse service often guides patients through the PRRT procedure as part of their Telehealth support service. And now NECA created and launched a new explainer video that can be viewed on demand. And the demand has been...
ITANET & NET ITALY ETS Webinar on Lung NETs
The collaboration between It.a.net & Net Italy ETS continues and on 10 July the second joint webinar on NETs was organized for patients. No lectures, no presentations: the aim of the event was to allow patients with pulmonary NETs to talk and ask questions...
Driving Change Takes Knowledge and Skills
Stephanie Alband, INCA President (Pheo Para Alliance, USA), Duncan Macduff, INCA Communications Committee Chair (NETSAS, South Africa) and Dirk Van Genechten (vzw NET & MEN Kanker Belgium) were delighted to take part in the WECAN Masterclass. WECAN Academy 2024...
New NETWise Podcast: What You Need to Know About NETs & NECs – Updated Episode
The NET Research Foundation updated its NETWise podcast with basic knowledge about NETs: “What You Need to Know About NETs & NECs”. Some of the best experts on neuroendocrine tumors from all around the world explain what neuroendocrine cancer is, how it spreads,...
Pheo Para Alliance’s SCOPPE Survey Is Published in Cancer Journal
Pheo Para Alliance (PPA) is proud to announce that “Patient-reported burden associated with pheochromocytoma/paraganglioma diagnosis” was recently published in Endocrine-Related Cancer 2024 Vol. 31, issue 6. The Scan of Pheochromocytoma & Paraganglioma Experiences...
LACNETS Health & Wellness Virtual Retreat on July 27th, 2024
Join the LACNETS Health & Wellness Virtual Retreat on Saturday, July 27th, 2024, from 8:30 AM to 12:15 PM PST. The theme of the retreat is "Radical Acceptance." Accepting a diagnosis of cancer for yourself or a loved one can be incredibly difficult to cope with....
Something New in the Air From NET Italy ETS
What happened on Monday, 24th June 2024, at the IEO Hospital (European Institute of Oncology)? Quite simply, a different way of communication between doctor and patient was tested. A two-way communication, with neither language nor specialist barriers and without...
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