7th INCA Global Patient Advocate Summit 2019 – Together We Can Make a Difference
21 organizations supporting NET patients from 5 continents met on 18-19 June in Plovdiv, Bulgaria to take part in the 7th INCA Global NET Patient Advocate Summit. The INCA Summit is an annual event that brings together the world’s leading patient advocates and medical...
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Updates on PRRT in New Zealand
Unicorn Foundation NZ is continually working on behalf of its patient community to improve access to medicines and treatments in NZ. Recently the National Services Governance Group endorsed the PRRT application to proceed to service design, which is the first of...
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A.I.NET Italy Vivere la Speranza Fundraising for NET Research
July the 13th, 2019 A.I.NET Vivere la Speranza will have the second edition of "SPES in Vino - A Cena dal Produttore" to present three new wine labels to be added to the two already existing ones to fundraise for research and trials in NETs and MEN. The new fragrances...
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NET-ESPAÑA in Focus
The Association of Patients with Neuroendocrine Tumors (NET-ESPAÑA) was born in 2016, when a group of patients were moved by the need to work in defence of NET patients, starting up an collaborative project. Blanca Guaras, President, on NET-ESPAÑA’s priorities: “The...
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European Cancer Organization (ECCO) Patient Advisory Committee – Central to ECCO Strategy
Making sure that patient input and perspective are front and central to the forthcoming ECCO 2019 European Cancer Summit “European Cancer Care: Across Borders” to take place on 12-14 September 2019 in Brussels – that was one of the priority topics for discussion at...
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NET Italy – Open Day for NET Patients & Their Caregivers
The Open Day for NET patients and their caregivers “Our ‘friend’ NET: a dialogue between patients and doctors” was held in Modena – Italy on June 22nd. The event was organized by NET Italy and was widely reported by the local media. Photo: NET Italy representatives,...
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INCA Members Showcase
Advancing collaboration and sharing of best practices are both integral elements of the INCA Summit. Each INCA member organization briefly profiled their achievements and challenges, thus providing insight as to what works in awareness raising, advocacy and clinical...
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AZNETS Continuous Medical Education Program to Raise NET Awareness in Kenya
The Continuous Medical education on Neuroendocrine Tumors (CMENET), a program developed by African Zebra Cancer Network Support (AZNETS), started at the beginning of 2019 and so far more than eighty healthcare professionals in Kericho County, Kenya, have been educated...
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2nd Annual Canadian NET Medical & Scientific Meeting (CNMSM)
CNETS Canada is delighted to host the 2nd Annual Canadian NETs Medical & Scientific Meeting taking place on October 26, 2019. This meeting is intended for medical professionals in Canada who are treating NET cancer patients. The agenda will include discussions, case...
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AMEND Awarded 4 Research Grants
AMEND awarded 4 research grants totaling almost £30,000 this month. Dr Miles Levy, a Consultant Endocrinologist from the University Hospitals of Leicester NHS Trust and an Honorary Associate Professor in Endocrinology and Genomic Medicine for the University of...
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