New Members Join INCA
INCA is pleased to announce that our family of member organizations has just grown with four new full Members and one Associate. With this, INCA now stretches to 6 continents, expanding for the first time to South America and Africa, and covering a larger part of ...
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Unicorn Foundation Australia Launches Be Fair
Unicorn Foundation, Australia, is launching the "Be Fair" campaign to shine a light on the often unfair and imbalanced distribution of funding to cancer organisations. The campaign addresses the government of the day to provide equitable support for all cancer types,...
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June 6-8 2019 Pheo Para International Conference Approaching
INCA reminds of the fast approaching dates for the PheoPara Conference which would take place in the beginning of June. This is the only planned patient, caregiver, family, and medical professional conference dedicated solely to pheo and para. You can still sign up...
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AMEND to Support RET@CRICK
AMEND is supporting a free one-day scientific meeting at the Francis Crick Institute in London on Monday 10 June. RET@CRICK will explore the different expressions of the RET protein. RET is involved in a diverse range of diseases, including NET syndromes, multiple...
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Updated Patient Information from NPF
Producing relevant patient information for this diverse group of neoplasms is a costly and time consuming process, but one that the NET Patient Foundation feels as one of its key pillars of activity. The NPF have various updated materials for 2019, including Version 2...
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INCA at the Lung Cancer Europe AGM
INCA Executive Director Teodora Kolarova presented the success story of the INCA Unmet Needs Survey at the Lung Cancer Europe Annual General Meeting on April 13, 2019 in Geneva. Over 25 representatives of national lung cancer patient groups from Europe were impressed...
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APTED Video on PRRT
A new explanatory video on PRRT has just been released by APTED for the French-speaking community. The video is published on APTED's YouTube Channel and shows in just 3 minutes how PRRT works. Subtitles could be easily added in any language. Watch the full video...
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CCF Launches New Website for PRRT and Gallium-68 PET/CT Scan
The Carcinoid Cancer Foundation is excited to announce the launch of their new website dedicated to providing information about PRRT and the Gallium-68 PET/CT scan. This site also includes an interactive map to locate facilities where PRRT and/or the Gallium-68 PET/CT...
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CNETS Canada Conference Presentations Available Online
CNETS Canada’s 2019 National NET Patient Conference brought together over 175 NET patients, patient leaders, caregivers and their families from across Canada. We are delighted to share that the 2019 National NET Patient Conference presentations are now available on...
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Pheo Para Alliance Hired First, Full-Time Executive Director
Stephanie Alband, MSBA, joins the Pheo Para Alliance with over 20 years of experience in the nonprofit industry. For the last ten years she has worked exclusively with rare disease organizations, including the Huntington's Disease Society of America and Angioma...
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