INCA COVID-19 Statement
Dear INCA Friends, In light of the very dynamic change in the picture globally with two leading directions of development: more social distancing and disturbance in the healthcare system under the COVID-19 burden, there will be challenges for all patients. As INCA is...
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The First Official Open Access Paper on the INCA Unmet Needs Survey Now Published in the International Journal of Cancer Print Edition
INCA is excited to announce that the paper "Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET healthcare professionals" is published in the March print edition of...
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Neuroendocrine Cancer UK’s MIND the Gap at the BPOS Conference
The MIND the Gap campaign was launched in 2019 by Neuroendocrine Cancer UK and recently showcased its aims and offered services at the British Psychosocial Oncology Society’s Conference, which took place in Edinburgh on February 26-28 this year. Neuroendocrine Cancer...
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Introducing NeuroEndocrine Cancer Australia
The Unicorn Foundation is excited to announce that it will be rebranding to NeuroEndocrine Cancer Australia from next month. After ten years since its inception, the Unicorn Foundation has become a well-respected name within the neuroendocrine cancer community. Yet...
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Children, Teens, and Young Adults with NETs Facebook Live Discussion
The Carcinoid Cancer Foundation hosted a special Facebook Live Event on February 11, featuring neuroendocrine tumor (NET) expert Dr. M. Sue O'Dorisio, to discuss challenges that children, teens and young adults with NETs face. Participants were able to submit...
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AMEND Develops a New Identity for the UK Phaeo/Para Syndrome Community
After canvassing AMEND’s membership in 2019 about potential rebranding, it became evident that AMEND’s existing SDH / PPGL Syndrome members were the only community that did not feel that the AMEND branding reflected their diseases well enough. AMEND therefore took the...
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NETRF Awards $3.5 Million in Grants to 12 Researchers in U.S., Europe, and Israel
The Neuroendocrine Tumor Research Foundation (NETRF) announced $3.5 million in neuroendocrine tumor (NET) research grants to fund 12 projects around the world in pursuit of more precise treatments. This round of funding features multiple new fronts for NETRF. The...
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When Strong Motivation, an Active Approach, Healthcare and a Little Bit of Chance Meet at the Right Time and Place
This is the incredible story of Linda, who will be celebrating her 27th Survivor Anniversary in 2020 after being given a diagnosis with a survival rate of less than 2 years. The year is 1993 – the Internet is just at its dawn, spread of information is slow, scarce and...
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INCA Announces Change of President
This is to announce that the new INCA President is Catherine Bouvier, Co-Founder and CEO of Neuroendocrine Cancer UK. This month, Simone Leyden’s term as INCA President came to an end and she passed the torch to Catherine Bouvier, who has officially assumed office....
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Masterclass on Neuroendocrine Tumors in Belgium
Dirk Van Genechten, Vice-President of vzw NET & MEN Kanker Belgium and INCA Board Member, took part in a masterclass on Neuroendocrine Tumors in Antwerp, Belgium, organized by the NETwerk Antwerpen-Waasland (ENETS Center of Excellence). Dirk Van Genechten was a key...
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