NET Patient Foundation Ambassadors at UKINETs
For the first time, four Patient Ambassadors from the NET Patient Foundation (five if you include Taska, a beautiful Canine Partner Assistance Dog) attended the UKINETs medical conference in the UK. Bethann, Craig, Kath and Sally were in attendance to share heartfelt...
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Upcoming in 2020: INCA/ENETS Symposium
INCA is pleased to announce that the INCA/ENETS Symposium will be held on March 13th, 2020 as part of the 17th Annual ENETS Conference for the Diagnosis and Treatment of Neuroendocrine Tumor Disease in Barcelona. INCA patient leaders will share best practices of...
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NET Patient Advocates Around the Globe Highlight the NET Community Achievements in 2019
2019 was indeed a big year for INCA, with the publication of the Unmet Needs in NETs article as an open-access publication in the International Journal of Cancer, the ENETS First Award for Poster in the Clinical Category, the 6 new INCA members that joined our family,...
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Pheo Para Genetics Webinar on January 27th 2020
The Pheo Para Alliance Live Webinar Series will kick off 2020 with Lauren Fishbein, MD, PhD, MTR in a live discussion on the genetic mutations associated with pheo para. Dr. Fishbein is the Assistant Professor of Medicine at the University of Colorado School of...
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A Decade of NET Research Progress
More than 100 neuroendocrine tumor researchers and clinicians from 25 U.S. states and eight countries came together to share progress at the Neuroendocrine Tumor Research Foundation (NETRF) Annual Research Symposium on May 2-3, 2019 in Boston, MA, USA. Physicians and...
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NET Education Day Talks by Unicorn Foundation New Zealand Available Online
The Unicorn Foundation New Zealand recently published videos of some of the NET specialist talks delivered on NET Education Day in New Zealand on their YouTube channel. The topics covered are as follows: • Imaging in Neuroendocrine Tumors: Dr Jane Reeve Auckland DHB)...
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2019 NET Research Grant Across Canada – Call for Applications
CNETS Canada is committed to improving the quality of life and survival for NET patients across Canada. To deliver on this vision, CNETS Canada has been supporting NET research since 2011, initially through a partnership-based approach and since 2016 through its...
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2020 Call for Applications to AMEND’s Research Award Fund
The Board of Trustees of AMEND have allocated £30,000 for the 2020 round of Research Awards. The awards aim to supplement an existing project or pump-prime new research ideas. Applicants must be registered members of AMEND (membership is free) and the successful...
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AZNETS Networking
In the last 6 months of 2019 AZNETS forged partnerships with cancer groups and foundations in order to strengthen its capacity and raise awareness on neuroendocrine cancer in Africa. The African NET patient group was supported by Faraja Cancer Support Trust, a leading...
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NET Italy Onlus Hosted a Meeting on Palliative Care in Italy
A meeting on patients’ rights and their access to palliative care was organized by NET Italy Onlus on December 4th in Mirandola. More than 120 patients attended to learn about the national regulations on access to care provided at home. Personal experiences and...
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