On 16th May, AMEND launched a set of films about SDH Syndromes (genetic neuroendocrine tumor syndromes). The films, Introducing SDH syndromes (Diagnosis, Treatment and Future), explore the experiences of three patients with an SDH syndrome who were diagnosed genetically after presenting with paragangliomas.  They will be used to raise awareness of SDH syndromes and the tumors that can occur as part of the syndromes, as well as for patient support.

For more information and to watch the films visit AMEND’s website.