AMEND is working with the European Reference Network for Rare Endocrine Conditions (ENDO ERN) to help widen access to gold standard treatment throughout Europe. During the European Society for Paediatric Endocrinology (ESPE) conference in Athens, AMEND CEO, Jo Grey was invited to speak in the ENDO ERN Symposium on Paediatric Pituitary Tumours in MEN1. These extremely rare tumours can cause various symptoms due to the additional hormone secretion, causing enormously negative impacts on the children they affect. Given the extraordinary expertise that is required to care for such children throughout childhood, transition and into adult services, the ENDO-ERN can provide the necessary framework to ensure that this is effective. For more information on ENDO ERN visit their website.
- Unicorn Foundation Leads NETs Awareness Efforts in Australia
- INCA Poster “Unmet needs in the global NETs patient community from the perspectives of patients, patient advocates and NET health professionals”at NANETS
- INCA Presents its Unmet Needs Initiative in 7 Languages and Across Key Medical Conferences
- NET Patients and Supporters Will Raise Awareness at Medical School Across the UK
- AMEND Makes Sure the Patient Voice Is Heard