Abstracts & Articles

INCA presentations and publications based on social surveys made possible through the generous participation of neuroendocrine cancer patients and healthcare professionals around the world.

2024

• “Global Educational Program on Neuroendocrine Neoplasms Diagnostics and Management for Family Doctors/PCPs” – WONCA Europe conference 2024 in Dublin, Ireland, September 2024

2023

• “Global Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients” – Journal of Neuroendocrinology – June 2023

2022

• “The impact of COVID-19 on the management of neuroendocrine tumors (NETS): An international NET CONNECT survey of NET patients and healthcare professionals treating net patients” – Journal of Neuroendocrinology – August 2022
• “The role of family doctors in neuroendocrine tumor diagnostics in Europe” ​ (poster) – 27th WONCA Europe Conference 2022, 28 June – 1 July 2022, London, UK
• “Improving understanding of neuroendocrine tumors (NETs) – A key to improving patient outcomes“ (poster) – 19th Annual ENETS Conference on March 10th-11th, 2022, Barcelona, Spain.
• Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor Patients (SCAN):The Diagnostic Process of GEP-NETs in Australia, Canada, China, France, Germany, the United Kingdom, and the United States of America (abstract & poster) – ASCO 2022 Gastrointestinal Cancers Symposium, January 20-22, 2022.

2021

• Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) – The Role of the Family Doctors in NET Diagnostics and Care (oral presentation) – WONCA 2021
• Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor Patients (SCAN): The Diagnostic Process of GEP-NETs in Asia, Europe, North America and Oceania [e-poster] – IASGO 2021, November 20-22, 2021, Taipei
• [ESSO40-0351] Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) – application of surgery in treatment of SI NETs – ESSO 40, oral presentation
• [0-4, page 172] NET Treatments and Follow-up Disease Management – Comparative Perspective (US and Canada vs. Global) [E-Poster] – NANETS Annual Multidisciplinary NET Medical Symposium, November 3-6
• [OP-0958] Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN): PRRT in the Treatment of Neuroendocrine Tumor (NET) Patients – EANM’21, Annual Congress of the European Association of Nuclear Medicine October 20-23, 2021 – Oral presentation
• INCA Boot Camp for Neuroendocrine Tumor (NET) Research Patient Advocates Advances Education and Patient Engagement in NET Research – e-poster – NORD Rare Summit 2021, October 18-19
• The Cost of Neuroendocrine Tumor Patient Healthcare:Comparison between Advanced Economies and Emerging and Developing Economies, ASCO Quality Care Symposium, Boston, 24-25.09.2021
• Care for neuroendocrine tumor patients, monitored by medical oncologists: Comparative data Europe vs North America, ESMO Congress 2021, 16-21.09.2021
• The NET Diagnostic Process and the Role of Gastrointestinal Specialists, [E-Poster] ESMO GI 2021, 30.06-3.07.2021
• The Role of Patient Support Groups in Neuroendocrine Neoplasms, INCA review article published in Current Oncology Reports (2021) volume 23, issue 5, 22 March 2021
• Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) NET Experts & NET Healthcare, (poster presentation on YouTube), ENETS 2021 Virtual, February 25-27, 2021
• Diagnosis of NETs: Japan vs UK, USA and Global – a Comparative Perspective (Presentation), 8th Japanese Neuroendocrine Tumor Society (JNETS) Annual Conference, January 23rd, 2021. Outstanding Presentation Award Winner

2020

• Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) – UK and Ireland vs. Global Diagnosis of NETs, (e-poster presentation), UKI NETS 2020, Nov. 30 – Dec. 3; Publication: Endocrine Abstracts (2020)
• Diagnosing Colorectal NETs – Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN), (e-poster presentation), European Colorectal Congress 2020, November 29 – December 2
• Thirty years of progress tackling neuroendocrine tumours, Nature Research Journal [November 10, 2020]
• Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) – Usage & Affordability of Nuclear Medicine Tools, a comparative perspective – abstract OP-177 and oral presentation – European Association of Nuclear Medicine, October 22-30, 2020 Virtual
• Survey of Challenges in Access to Diagnostics and Treatments for Neuroendocrine Tumor (NET) Patients (SCAN): Global disparities in quality healthcare for NETs (e-poster presentation), 2020 ASCO Quality Care Symposium, October 9-10, J Clin Oncol 38, 2020 (suppl 29; abstr 127)
• Managing Online Survey as a Successful Global Rare Disease Patient Community Building Model, (e-poster), NORD Summit, October 8-9, 2020
• Survey of Challenges in Access to Diagnostics and Treatments for Neuroendocrine Tumor (NET) Patients (SCAN): USA and Canada vs Global Diagnosis of NETs (abstract & e-poster); NANETS’ Multidisciplinary NET Medical Virtual Symposium, 2020, October 2-3
• Survey of Challenges in Access to Diagnostics and Treatments for Neuroendocrine Tumor (NET) Patients (SCAN) – Healthcare Quality Evaluation; [e-poster] – ESMO Virtual Congress 2020, 19-21 September 2020
• Survey of Challenges in Access to Diagnostics and Treatments for Neuroendocrine Tumor (NET) Patients (SCAN): Early diagnosis and treatment availability (abstract and poster presentation), ESMO World Congress on Gastrointestinal Cancer (ESMO GI) [July 1-4, 2020]
• Survey of Challenges in Access to Diagnostics and Treatments for Neuroendocrine Tumor (NET) Patients (SCAN) – Awareness of Specialized Techniques and Latest Interventions (abstract and poster presentation), American Society of Clinical Oncology (ASCO) – ASCO Annual Meeting (Virtual) [May 29-31, 2020]
• Survey of Challenges in Access to Diagnostics and Treatments for Neuroendocrine Tumor (NET) Patients – Assessment of Early Diagnosis (poster presentation), European Neuroendocrine Tumor Society (ENETS) Virtual Conference 2020 [March, 11-13, 2020]

2019

• Access to Diagnostics and Treatments of Neuroendocrine Tumors (NETs): The difference between patient perception and reality (poster), ASCO Breakthrough Summit for Oncology Innovators [October, 11-13, 2019]
• Survey of Challenges in Access to Diagnostics and Treatments in NETs (SCAN) (poster), NANETS Multidisciplinary NET Medical Symposium, [October 3-5, 2019]
• Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET healthcare professionals, International Journal of Cancer [September 11, 2019]
• Access to diagnostics and treatment of neuroendocrine tumors (NETs): The difference between patient perception and reality (online abstract), ASCO Annual Meeting, [May, 31- June, 04, 2019]
• Unmet Needs in Global Neuroendocrine Tumour (NET) Care: Similarities and Differences in the Perspectives of Patients, Patient Advocates and NET Health Professionals,(poster), First Prize in the Clinical Category, 16th Annual ENETS Conference, [March, 2019]

2018

• Unmet needs in the global NETs patient community: an assessment of major gaps from the perspectives of patients, patient advocates and NET health professionals, (oral presentation), Asia Pacific Neuroendocrine Tumour Society (APNETS) [November, 9, 2018]
• Unmet needs in the management of neuroendocrine tumours (NETs): A global survey of patients, patient advocates and healthcare professionals (poster), Best Poster Award at the European Society for Medical Oncology (ESMO) 2018 Congress, [October, 19-23, 2018]
• Unmet needs in the global NETs patient community from the perspectives of patients, patient advocates and NET health professionals, (poster), North American Neuroendocrine Tumour Society (NANETs) Annual Symposium Abstracts [October, 4-6, 2018]
• Patient-Reported Experience of Diagnosis, Management, and Burden of Neuroendocrine Tumors: Results From a Large Patient Survey in the United States, spreading among medical community the US results of the Global NET Patient Survey, (article), Journal of neuroendocrine tumors and pancreatic diseases and sciences, [May/June, 2017, Num 5, Vol. 46]
• Patient-Reported Burden of a Neuroendocrine Tumor (NET) Diagnosis Results From the First Global Survey of Patients With NETs, (article), Journal of Global Oncology, [February, 2017, Issue 1, Vol 3]