Helping NET Cancer patients get a timely diagnosis,
the best care and ultimately a cure
If you don’t suspect it you can’t detect it
84% of NET patients
lack information
Their needs for information about treatment
options were not met at the time of diagnosis.
58% of NET patients are
diagnosed at an advanced stage
How Can I Help?
Latest News
Pheo Para Awareness Week – August 23-29
The Pheo Para Alliance launched the inaugural campaign to raise awareness for pheochromocytoma (pheo) and paraganglioma (para), rare neuroendocrine tumors, from August 23 – 29. The objectives of this week-long campaign were to inspire & empower pheo para constituents...
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HOOFING IT Across Canada for Neuroendocrine Cancer Research!
Between July 1st and September 7th, the Canadian neuroendocrine cancer community is working together in an effort to raise $100,000 in the 2020 Neuroendocrine cancer research fundraising campaign, HOOFING IT Across Canada for Neuroendocrine Cancer Research! After 45...
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AMEND Launches New PPGL GenNET Group
During the inaugural, international Phaeo Para Awareness Week (24-30 August), AMEND were delighted to launch a brand new group identity for patients and families in the UK affected by phaeochromocytoma and paraganglioma tumors and syndromes. Phaeo Para Support UK is...
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