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inca header NET Pat UK
NET Patient Foundation-UK Data Project 2017

Due to a lack of ICD-10 codes for neuroendocrine cancers, it has been difficult for NET Patient Foundation – UK, INCA member organization, to extract data about NET patients from the NHS cancer registry. It is crucial that we are able to obtain data about NET cancers from the cancer registry in order to be…

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AMEND UK
Free booklet on issues of employment and returning to work with MEN from AMEND-UK

In a 2016 AMEND-UK, INCA member organization, made a member survey where just over half of people told that their work or career had been impacted in a negative way as a direct result of having multiple endocrine neoplasia, or a related condition. In May 2017 AMEND published a new booklet “Employment & Returning to Work”…

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inca header Unicorn project
Unicorn Foundation invites NET patients to participate in Defining NETs research

It’s been nearly twelve months since the “Defining NETs” research project of Unicorn Foundation - Australia, INCA member organization, started and while some valuable data has been collected so far, it is still behind the anticipated targets in recruitment. So far patients from Peter Mac, Royal North Shore and Lyell McEwin Hospital are assisting with…

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NETRF grants
NETRF announced in April largest NET research commitment ever

NET Research Foundation (NETRF), INCA member organization, announced on 27 April 2017 its largest research commitment ever - $4 million in collaborative grants - most from its new Accelerator Grants program to study neuroendocrine tumors (NETs). Accelerator Grants recognize innovative and transformative research of NET drivers, capable of expanding our understanding of the disease and…

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