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Tag: neuroendocrine tumors

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Registration for Unicorn Foundation New Zealand Annual NET Cancer Patient Education Day Is Open

The Unicorn Foundation New Zealand will hold its annual NET Cancer Patient Education Day on Saturday 22nd Sept, from 10am to 5pm at AUT City Campus, Room WG308, 55 Wellesley Street, Auckland City. The Unicorn Foundation New Zealand is excited to be bringing you international speakers and loads of practical information for all NET patients…

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NET Patient Foundation Launches Packs for New Patients

The NET Patient Foundation is pleased to announce that its pack for new patients is now available. NPF provides this pack to hospitals across the UK to ensure every new patient receives useful and straightforward information created just for them. It contains a USB wristband which includes informative videos and a comprehensive guide to life…

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NETRF
NETRF Seed Funding Helps Grow the Field

Two NETRF-funded researchers received Career Development Awards at the 2018 annual meeting of the American Society of Clinical Oncology (ASCO), one of the largest and most respected gatherings of physicians in the field of oncology. The awards, offered by ASCO’s Conquer Cancer Foundation, fund three years of research on patient-focused topics. Award Winners: Daniel Halperin,…

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Letting Go and Looking Forward – CCF Anniversary Video Speaks About the Benefit of Yoga

CCF’s 50th anniversary video series continues with “Letting Go and Looking Forward.” Diagnosed with a pancreatic neuroendocrine tumor in 2014, Stacie Chevrier’s first reaction was fear and anxiety. Then she found yoga, where she is strong, present, and in control. “You have to find something to be grateful for every day, because there is always…

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NET Patient Foundation
NET Patient Foundation: Research to Improve Clinical Experience and Understand Patients’ Concerns.

The NET Patient Foundation is committed to research into neuroendocrine cancers. This research can take different forms, but research that can have potential immediate impact in improving clinical experience, and understanding of the patients concerns is so valid. The NET Patient Foundation has supported 2 recent publications, which have both utilised the patient experience to…

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NETRF
Unraveling the Causes of Small Intestinal NETs

The first step in curing a disease is understanding it. Unfortunately, there is a lot we still don’t know about small-intestinal  NETs (SI-NETs). That’s why NETRF invested in an international team to look for a cause. The principal investigators are: Matthew Meyerson, MD, PhD, Director of Cancer Genomics at Dana-Farber Cancer Institute, Professor of Pathology at Harvard…

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The Carcinoid Cancer Foundation Celebrated its 50th Anniversary

The Carcinoid Cancer Foundation (CCF) celebrated its 50th anniversary on March 7, 2018 – yes, CCF is fifty years old, the oldest carcinoid/neuroendocrine tumor foundation in the United States and the world!  In recognition of this special anniversary, a flag was flown over the U.S. Capitol building in Washington, DC. CCF also released the first…

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The Second INCA/ENETS Symposium – a Collaborative Effort by NET Patient and Medical Leaders to Address Unmet Needs in NETs

Over 150 conference participants, including some of the thought-leaders in the NET medical community attended the Second INCA/ENETS Symposium on March 9, 2018. The significant increase in the number of people interested in the topics discussed compared to last year, clearly indicated the growing appreciation of the role patients can play. The focus was on…

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NET Research Foundation Supports a Project for Understanding and Treating NETs: In the Form of Laboratory Mini-Organs

Will the ability of a Dutch molecular geneticist to build miniature human organs in a Petri dish solve a decade’s old problem in NET research? How the tiniest laboratory replicas of your small intestine might help scientists run a dress rehearsal to see if your next treatment will work. Researchers use laboratory models to understand…

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