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Tag: NETs

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The Unicorn Foundation Australia to host the 6th Annual APNETS Meeting

  The Unicorn Foundation looks forward to hosting the 6th Annual Meeting of the Asia Pacific Neuroendocrine Tumor Society (APNETs) taking place on 9-11 November 2018 at Melbourne Convention and Exhibition Centre. Due to the massive success of the 4th World Theranostics Congress in 2016, an international scientific meeting is to be convened by a…

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NET Research Foundation Supports a Project for Understanding and Treating NETs: In the Form of Laboratory Mini-Organs

Will the ability of a Dutch molecular geneticist to build miniature human organs in a Petri dish solve a decade’s old problem in NET research? How the tiniest laboratory replicas of your small intestine might help scientists run a dress rehearsal to see if your next treatment will work. Researchers use laboratory models to understand…

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Every Day is NET Cancer Day: APTED France Gathered Patients and Physicians in Nantes

On 26th January, 2018, APTED held a meeting with patients and healthcare professionals in Nantes, France. The meeting was organized in partnership with Renaten, GTE (Groupes d'étude des tumeurs endocrines), Central University Hospital of Nantes and the Central University Hospital of Angers. Some of the topics under discussion covered: • surgical modalities in Pancreatic NETs:…

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INCA to be Represented on the ECCO Patient Advisory Committee

European Cancer Organisation (ECCO) invited INCA to nominate a representative to serve on the ECCO Patient Advisory Committee (PAC) for the next mandate (February 1, 2018 - Feb 1, 2020). Being committed to endorse patient interest agenda, ECCO created the Patient Advisory Committee (PAC) 2008, to provide European patient organizations and bodies involved in patient…

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NET Patient Foundation’s Data Collection Project Shows Increase in Incidence of NETs throughout the UK

NET Patient Foundation shared some of their data collection project within the UKINETs community in December 2017 illustrating the increase in incidence of NETs throughout the UK. Historically the incidence and prevalence of neuroendocrine tumours (NETs) has been difficult to establish due to issues with disease coding and data collection. Studies by Ellis et al…

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CNETS Canada Launches a Call for Applications for the 2018 NET Research Grants on February 15

CNETS Canada has lots of exciting plans for 2018 in keeping with its priorities to provide support, education and awareness for Canadians on all aspects of Neuroendocrine Tumours (NETs). Fundraising events continue to be critical for CNETS Canada to be able to support research initiatives specific to neuroendocrine cancer. For 2018 CNETS Canada is participating…

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AMEND Marks its 15th Anniversary

2018 marks the 15th year of AMEND’s work to provide information resources and support services to families affected by multiple endocrine neoplasia and associated tumours and disorders. Therefore there is plenty going on this year, such a few highlights: · AMEND members will be taking part in 2 major surveys. The European Multiple Endocrine Neoplasia…

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INCA Shares Unmet Needs Findings with Patient Organizations Tackling Rare Cancers Challenges

From the 2nd to the 4th of December 2017, Rare Cancers Europe (RCE), the European Society for Medical Oncology (ESMO) and the European School of Oncology (ESO organised) a specific training course for rare cancers patient advocates. The event brought together in Milan patient advocates from across Europe, including Turkey and Russia, to exchange views…

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