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Tag: NET

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NET Patient Foundation: Walk for NETs

It is a constant challenge for all patient organisations to raise funds to keep their services running, and one of the NPF's campaigns is Walk for NETs - raising funds and awareness! It is open to anyone and can be done anytime between June and September, anywhere in the UK. A gentle stroll with the…

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Where the Heart Is

CCF’s 50th anniversary video series continues with “Where the Heart Is.”  It was 2004 and Pat and Chuck were preparing to move to a new home – life was good, personally and professionally. Then Pat suddenly developed what the doctor thought was bronchitis. When she went into heart failure they discovered a neuroendocrine tumor on…

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The World Lost Aretha Franklin to NETs

The Queen of Soul, Aretha Franklin sadly died of neuroendocrine cancer (NETs) of the pancreas, the very same cancer that killed Apple founder Steve Jobs and takes the life of thousands of people each year. Neuroendocrine cancer is a type of cancer that is very different to the more common pancreatic cancer. As announced in…

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NET Patient Foundation Launches Packs for New Patients

The NET Patient Foundation is pleased to announce that its pack for new patients is now available. NPF provides this pack to hospitals across the UK to ensure every new patient receives useful and straightforward information created just for them. It contains a USB wristband which includes informative videos and a comprehensive guide to life…

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Pheo Para Alliance Celebrates Merger with Pheo Para Troopers at its 9th Annual Gala

Bethesda, MD – “Stronger United” was the theme of the Pheo Para Alliance’s 9th annual gala in May celebrating its recent merger with the Pheo Para Troopers and raising over $70,000 to advance its mission to support pheochromocytoma and paraganglioma (Pheo Para) patients through research and advocacy. Prior to the merger, the Pheo Para Alliance…

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Letting Go and Looking Forward – CCF Anniversary Video Speaks About the Benefit of Yoga

CCF’s 50th anniversary video series continues with “Letting Go and Looking Forward.” Diagnosed with a pancreatic neuroendocrine tumor in 2014, Stacie Chevrier’s first reaction was fear and anxiety. Then she found yoga, where she is strong, present, and in control. “You have to find something to be grateful for every day, because there is always…

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