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Tag: NET Patient Foundation

NET Patient Foundation
NET Patient Foundation: Research to Improve Clinical Experience and Understand Patients’ Concerns.

The NET Patient Foundation is committed to research into neuroendocrine cancers. This research can take different forms, but research that can have potential immediate impact in improving clinical experience, and understanding of the patients concerns is so valid. The NET Patient Foundation has supported 2 recent publications, which have both utilised the patient experience to…

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NET Patient Foundation UK Surveys Merkel Cell Carcinoma Patients’ Needs and Provides Support

The NET Patient Foundation is dedicated to supporting anyone affected by any neuroendocrine cancer diagnosis. We are also very aware that some of the rarer forms of neuroendocrine cancer have significantly less resource. One of these rare forms is a skin neuroendocrine carcinoma - Merkel Cell Carcinoma (MCC). We have been working on understanding the…

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NET Patient Foundation’s Data Collection Project Shows Increase in Incidence of NETs throughout the UK

NET Patient Foundation shared some of their data collection project within the UKINETs community in December 2017 illustrating the increase in incidence of NETs throughout the UK. Historically the incidence and prevalence of neuroendocrine tumours (NETs) has been difficult to establish due to issues with disease coding and data collection. Studies by Ellis et al…

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amendkids
AMEND Marks its 15th Anniversary

2018 marks the 15th year of AMEND’s work to provide information resources and support services to families affected by multiple endocrine neoplasia and associated tumours and disorders. Therefore there is plenty going on this year, such a few highlights: · AMEND members will be taking part in 2 major surveys. The European Multiple Endocrine Neoplasia…

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NET Patient Foundation, NET Cancer Day
On NET Cancer Day 2017, NET Patient Foundation published a new report on improving outcomes for patients with NETs in Scotland

On the World NET Cancer Day 2017, the NET Patient Foundation publishes a new report focused on improving outcomes for patients with NETs in Scotland. This follows the success of our Chapter Ten report last year, which made recommendations for inclusion in the Cancer Task Force National Strategy for England to improve outcomes for rare…

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NET Cancer Day
Add a NET Cancer Day ribbon to your profile picture to support awareness about NETs

NET Patient Foundation UK has started a campaign on the occasion of 10th November – World NET Cancer Day - to help organization raise awareness of Neuroendocrine Cancer by adding a Twibbon to one’s profile picture and ask everyone one knows to join in our Twibbon campaign. Join the Twibbon campaign and spread awareness on…

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NET Patient Foundation
NET Patient Foundation invites NET patient for a raising awareness reception at House of Commons

Would you be interested in joining us at a reception in the House of Commons to raise awareness of rare and less common cancers amongst MPs? NET Patient Foundation is looking for an NPF patient to join the organization on Wednesday 22nd November between 4pm and 6pm. It's a critical time for rare and less…

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NET Patient Foundation
INCA Member in Focus: NET Patient Foundation UK

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present NET Patient Foundation UK by interviewing Catherine Bouvier who is is the CEO  of the organization. When was the organization founded and how? The NET Patient Foundation was founded in 2006, but the…

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NET Patient Foundation NET Cancer Day
NET Patient Foundation UK encourages for NET Cancer Day Coffee Morning

NET Patient Foundation UK announced that for this year's NET Cancer Day they are asking everyone to hold a coffee morning to help raise awareness of Neuroendocrine Cancer and to raise some much needed funds for the organization. Volunteers are invited to sign up by completing the form on the website and NET Patient Foundation…

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NET Patient Foundation 10 years anniversary
NET Patient Foundation launches the first NET retreat for 10-year anniversary

After 10 years of the NET Patient Foundation UK and having received the most amazing support from the NET community, the team wanted to give a little back to those who have to live with this disease and its unpredictable and complex nature. NET Patient Foundation teamed up with Penny Brohn Cancer Care and hired…

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