• Icon International Neuroendocrine Cancer Alliance

  • Mail: post@incalliance.org

Tag: NET Patient Foundation

walk for nets montagers
NET Patient Foundation: Walk for NETs

It is a constant challenge for all patient organisations to raise funds to keep their services running, and one of the NPF's campaigns is Walk for NETs - raising funds and awareness! It is open to anyone and can be done anytime between June and September, anywhere in the UK. A gentle stroll with the…

Read More
npfcrop
NET Patient Foundation Reports Success in Treatment Availability in UK

For a couple of years now, the UK has struggled with NET treatments being unavailable, due to lack of NHS approval. The NPF is however delighted with the three positive outcomes it has received this month. Patients, healthcare professionals and industry groups have been working so hard to bring us back to a service where…

Read More
npf
NET Patient Foundation Launches Packs for New Patients

The NET Patient Foundation is pleased to announce that its pack for new patients is now available. NPF provides this pack to hospitals across the UK to ensure every new patient receives useful and straightforward information created just for them. It contains a USB wristband which includes informative videos and a comprehensive guide to life…

Read More
NET Patient Foundation
NET Patient Foundation: Research to Improve Clinical Experience and Understand Patients’ Concerns.

The NET Patient Foundation is committed to research into neuroendocrine cancers. This research can take different forms, but research that can have potential immediate impact in improving clinical experience, and understanding of the patients concerns is so valid. The NET Patient Foundation has supported 2 recent publications, which have both utilised the patient experience to…

Read More
illo_npf
NET Patient Foundation UK Surveys Merkel Cell Carcinoma Patients’ Needs and Provides Support

The NET Patient Foundation is dedicated to supporting anyone affected by any neuroendocrine cancer diagnosis. We are also very aware that some of the rarer forms of neuroendocrine cancer have significantly less resource. One of these rare forms is a skin neuroendocrine carcinoma - Merkel Cell Carcinoma (MCC). We have been working on understanding the…

Read More
NPF 1
NET Patient Foundation’s Data Collection Project Shows Increase in Incidence of NETs throughout the UK

NET Patient Foundation shared some of their data collection project within the UKINETs community in December 2017 illustrating the increase in incidence of NETs throughout the UK. Historically the incidence and prevalence of neuroendocrine tumours (NETs) has been difficult to establish due to issues with disease coding and data collection. Studies by Ellis et al…

Read More
amendkids
AMEND Marks its 15th Anniversary

2018 marks the 15th year of AMEND’s work to provide information resources and support services to families affected by multiple endocrine neoplasia and associated tumours and disorders. Therefore there is plenty going on this year, such a few highlights: · AMEND members will be taking part in 2 major surveys. The European Multiple Endocrine Neoplasia…

Read More
NET Patient Foundation, NET Cancer Day
On NET Cancer Day 2017, NET Patient Foundation published a new report on improving outcomes for patients with NETs in Scotland

On the World NET Cancer Day 2017, the NET Patient Foundation publishes a new report focused on improving outcomes for patients with NETs in Scotland. This follows the success of our Chapter Ten report last year, which made recommendations for inclusion in the Cancer Task Force National Strategy for England to improve outcomes for rare…

Read More
NET Cancer Day
Add a NET Cancer Day ribbon to your profile picture to support awareness about NETs

NET Patient Foundation UK has started a campaign on the occasion of 10th November – World NET Cancer Day - to help organization raise awareness of Neuroendocrine Cancer by adding a Twibbon to one’s profile picture and ask everyone one knows to join in our Twibbon campaign. Join the Twibbon campaign and spread awareness on…

Read More
NET Patient Foundation
NET Patient Foundation invites NET patient for a raising awareness reception at House of Commons

Would you be interested in joining us at a reception in the House of Commons to raise awareness of rare and less common cancers amongst MPs? NET Patient Foundation is looking for an NPF patient to join the organization on Wednesday 22nd November between 4pm and 6pm. It's a critical time for rare and less…

Read More
Copyright © 2015 International Neuroendocrine Cancer Alliance. All right reserved.
Make a Donation
Paybal button