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Tag: NET Patient Foundation

NET Cancer Day
Add a NET Cancer Day ribbon to your profile picture to support awareness about NETs

NET Patient Foundation UK has started a campaign on the occasion of 10th November – World NET Cancer Day - to help organization raise awareness of Neuroendocrine Cancer by adding a Twibbon to one’s profile picture and ask everyone one knows to join in our Twibbon campaign. Join the Twibbon campaign and spread awareness on…

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NET Patient Foundation
NET Patient Foundation invites NET patient for a raising awareness reception at House of Commons

Would you be interested in joining us at a reception in the House of Commons to raise awareness of rare and less common cancers amongst MPs? NET Patient Foundation is looking for an NPF patient to join the organization on Wednesday 22nd November between 4pm and 6pm. It's a critical time for rare and less…

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NET Patient Foundation
INCA Member in Focus: NET Patient Foundation UK

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present NET Patient Foundation UK by interviewing Catherine Bouvier who is is the CEO  of the organization. When was the organization founded and how? The NET Patient Foundation was founded in 2006, but the…

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NET Patient Foundation NET Cancer Day
NET Patient Foundation UK encourages for NET Cancer Day Coffee Morning

NET Patient Foundation UK announced that for this year's NET Cancer Day they are asking everyone to hold a coffee morning to help raise awareness of Neuroendocrine Cancer and to raise some much needed funds for the organization. Volunteers are invited to sign up by completing the form on the website and NET Patient Foundation…

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NET Patient Foundation 10 years anniversary
NET Patient Foundation launches the first NET retreat for 10-year anniversary

After 10 years of the NET Patient Foundation UK and having received the most amazing support from the NET community, the team wanted to give a little back to those who have to live with this disease and its unpredictable and complex nature. NET Patient Foundation teamed up with Penny Brohn Cancer Care and hired…

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NET Patient Foundation team
The NET Patient Foundation UK expands community support team

It has been a delight to be able to expand NET Patient Foundation, UK, band of 1 nurse to a band of 2 this summer. A specialist nuclear medicine/NET nurse, Lindsey Devlin has joined our team to help support patients in the community alongside Nikie Jervis. We have around 30 support groups set up in…

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NET Patient Foundation in the Telegraph
NET Patient Foundation UK in The Telegraph

NET Patient Foundation efforts were the reason to feature the importance of NET in Telegraph Daily, UK. The report featured a friend of the reporter with NET: “I knew about NETs only because the charity devoted to raising awareness and funding research – the Net Patient Foundation – is a member of Cancer52 , the…

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inca header NET Pat UK
NET Patient Foundation-UK Data Project 2017

Due to a lack of ICD-10 codes for neuroendocrine cancers, it has been difficult for NET Patient Foundation – UK, INCA member organization, to extract data about NET patients from the NHS cancer registry. It is crucial that we are able to obtain data about NET cancers from the cancer registry in order to be…

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NET Patient Foundation UK
NET Patient Foundation UK launches NET Handbook

NET Patient Foundation announced its new NET Handbook, which is a guide covering all aspects of living with NETs. The book is being sent out to hospitals to be given to all newly diagnosed NET patients. It is also available to purchase as a donation to the foundation on the organization’s website. The Handbook will…

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