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Tag: NET Cancer

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Registration for Unicorn Foundation New Zealand Annual NET Cancer Patient Education Day Is Open

The Unicorn Foundation New Zealand will hold its annual NET Cancer Patient Education Day on Saturday 22nd Sept, from 10am to 5pm at AUT City Campus, Room WG308, 55 Wellesley Street, Auckland City. The Unicorn Foundation New Zealand is excited to be bringing you international speakers and loads of practical information for all NET patients…

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Unicorn Foundation New Zealand Fundraising Waterfront Half Marathon

The Unicorn Foundation New Zealand has a growing team of keen walkers & runners who took part in the Waterfront Half Marathon on April 8, 2018 in Auckland, New Zealand. Team Unicorn Foundation New Zealand ran to help raise funds and awareness for the work of the organization, which supports and advocates for patients and…

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AMEND Marks its 15th Anniversary

2018 marks the 15th year of AMEND’s work to provide information resources and support services to families affected by multiple endocrine neoplasia and associated tumours and disorders. Therefore there is plenty going on this year, such a few highlights: · AMEND members will be taking part in 2 major surveys. The European Multiple Endocrine Neoplasia…

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Profile picture campaign for NET Cancer Day

NET Cancer Day added to the Facebook profile picture in support of NET Cancer Day.

NET Cancer Day had a very success full profile picture campaign for the 10. november. We asked our facebook friends to add NET Cancer Day to their profile picture on Facebook in support of NET Cancer Day.

ncd17n

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Let’s Talk About NETs

“Let’s Talk About NETs” this World NET Cancer Day Nov 10.

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NET patient survey, Oceania
Patient-reported experience of the impact and burden of neuroendocrine tumors: Oceania patient results from a large global survey

This new large survey, published in Asia-Pacific Journal of Clinical Oncology in the beginning of November 2017, was a self-reported global survey regarding NET knowledge/awareness, disease impact/management, interaction with medical teams, and desired improvements. One hundred thirty-eight patients (7% of the global study) in the Oceania region answered closed-ended questions using graded descriptors on their…

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5th INCA NET Patient Advocacy Summit

 

For a fifth time since 2012 INCA brings together NET patient advocate leaders from around the globe to learn about the latest treatment developments and research, as well as share best practices and build common platforms. This year, for the first time INCA (International Neuroendocrine Cancer Alliance) and ENETs held a joint symposium between NET physicians and patient advocates from around the world, at the ENETS conference in Barcelona.

 

5th INCA NET Patient Advocacy Summit

Barcelona 8-10 March 2017

 

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INCA ENETS Symposium 2017

 

This year, for the first time INCA (International Neuroendocrine Cancer Alliance) and ENETs held a joint symposium between NET physicians and patient advocates from around the world, at the ENETS conference in Barcelona.

 

INCA ENETS Symposium 2017

Blog post by Simone Leyden
Barcelona 8-10 March

 

 

 

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Notes from ENETS 2017

 

Blog post by Bill Claxton.
Barcelona 8-10 March

Notes from ENETS 2017

ENETS is the world’s premier conference on neuroendocrine cancer, this year attended by more than 1200 physicians and a few dozen patient advocates. The ENETS conference highlighted the latest in understanding in tumor biology as well as offering the most current and relevant aspects of neuroendocrine tumor (NET) advances in diagnostics and therapeutics.

 

Bill Claxton, one of the founders of CNETS Singapore, is a well known patient advocate. Bill has been involved in video recording of many international carcinoid and neuroendocrine tumor conferences. These videos provide an excellent resource for patients, caregivers and physicians. Read more from Bill, Good news for NET Cancer
Learn more; Webinar Series with NET Cancer specialists and Webinar for Lung NETs

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Factbox NET Cancer

 

Neuroendocrine Tumors (NETs) are a family of cancers that cause tumors in the neuroendocrine system.

 

Factbox

 

Neuroendocrine Tumours (NETs) are a family of cancers that cause tumours in the neuroendocrine system. The neuroendocrine system consists of nerve and gland cells. It produces hormones and releases them into the bloodstream. NETs are generated by cells that release the hormones. The majority of NETs are found in the intestine, pancreas and the lungs.(4)

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