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Tag: NET Cancer

Inca blog Bill ENETS 1
Notes from ENETS 2017

 

Blog post by Bill Claxton.
Barcelona 8-10 March

Notes from ENETS 2017

ENETS is the world’s premier conference on neuroendocrine cancer, this year attended by more than 1200 physicians and a few dozen patient advocates. The ENETS conference highlighted the latest in understanding in tumor biology as well as offering the most current and relevant aspects of neuroendocrine tumor (NET) advances in diagnostics and therapeutics.

 

Bill Claxton, one of the founders of CNETS Singapore, is a well known patient advocate. Bill has been involved in video recording of many international carcinoid and neuroendocrine tumor conferences. These videos provide an excellent resource for patients, caregivers and physicians. Read more from Bill, Good news for NET Cancer
Learn more; Webinar Series with NET Cancer specialists and Webinar for Lung NETs

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Factbox NET Cancer

 

Neuroendocrine Tumors (NETs) are a family of cancers that cause tumors in the neuroendocrine system.

 

Factbox

 

Neuroendocrine Tumours (NETs) are a family of cancers that cause tumours in the neuroendocrine system. The neuroendocrine system consists of nerve and gland cells. It produces hormones and releases them into the bloodstream. NETs are generated by cells that release the hormones. The majority of NETs are found in the intestine, pancreas and the lungs.(4)

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How to improve NET care

 

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists and industries working to address the needs of the NET community. The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy recommendations on how
NET care can be improved

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November, World NET Cancer Day.

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The NET Platform members call for more action on NETs

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists
and industries working to address the needs of the NET community.

 

The NET Platform members call for more action on Neuroendocrine Tumours (NETs)

Neuroendocrine tumours (NETs) are an increasingly common, yet poorly understood form of cancer. Given the benign or non-specific symptoms of the disease, patients are often misdiagnosed for many years. The result is that by the time the correct diagnosis is in place, life expectancy is drastically reduced.

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NET Cancer webinar series

NET Cancer specialist at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference 2016.

Webinar Series with NET Cancer specialists

 A series of webinars from NET Cancer specialist. Produced by CNETS SG at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference. Many of the talks are of particularly interest to NET Cancer advocates, and also to patients and caregivers.  View presentations from; Marianne Pavel, Rodney Hicks, Sugandha Dureja, Frank Ulrich Pape, David Tai, Kjell Oberg and many more. 

Find more from the CNETS Ipsen Webinar Series at https://itr8.wistia.com/projects/4eujigyhr0

Thanks to Carcinoid & Neuroendocrine Tumor Society of Singapore, CNETS SG, for sharing and producing the webinar. Also thanks to Ipsen Pharma for their support creating these videos.

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Policy recommendations NETs

 

The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy Recommendations on Neuroendocrine Tumors

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November 2015.

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Let’s Talk About NETs

Unfortunately in the crowded space of health promotion amongst not for profits and patient groups, less common cancers such as NET Cancer (neuroendocrine cancer) do not get the attention that they deserve and need.

Let’s Talk About NETs” this World NET Cancer Day Nov 10.

 

This year we propose that we simplify our complicated message and with the help of our patients and supporters around the country (and around the globe) spread the news through “Let’s Talk About NETs”.

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4th INCA NET Patient Advocacy Summit

For a fourth time since 2012 INCA brings together NET patient advocate leaders from around the globe to learn about the latest treatment developments and research, as well as share best practices and build common platforms.

4th INCA NET Patient Advocacy Summit in Plovdiv (Bulgaria), 11-13 July 2016.

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inca header survey
First Global Neuroendocrine Tumor Patient Survey Results Published in Journal of Global Oncology

  “Patient-Reported Burden of a Neuroendocrine Tumor (NET) Diagnosis: Results From the First Global Survey of Patients With NETs” - a collaborative effort between the International Neuroendocrine Cancer Alliance (INCA) and Novartis, was published in the Journal of Global Oncology. The Global NET Patient Survey is the first large, global initiative that attempts to characterize…

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Cycling for Net

Our Cycling Team will  leave Paris on 24 June, to arrive in Winchester on 28 June.  Professor Ramage will join our team, composed mainly of patients and carers, and he will accompany them to Winchester. In May 2015, members of our Association APTED (Association de Patients porteurs de Tumeurs Endocrines Diverses) met in Paris to…

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