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Tag: NET Cancer patients

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Factbox NET Cancer

 

Neuroendocrine Tumors (NETs) are a family of cancers that cause tumors in the neuroendocrine system.

 

Factbox

 

Neuroendocrine Tumours (NETs) are a family of cancers that cause tumours in the neuroendocrine system. The neuroendocrine system consists of nerve and gland cells. It produces hormones and releases them into the bloodstream. NETs are generated by cells that release the hormones. The majority of NETs are found in the intestine, pancreas and the lungs.(4)

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How to improve NET care

 

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists and industries working to address the needs of the NET community. The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy recommendations on how
NET care can be improved

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November, World NET Cancer Day.

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The NET Platform members call for more action on NETs

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists
and industries working to address the needs of the NET community.

 

The NET Platform members call for more action on Neuroendocrine Tumours (NETs)

Neuroendocrine tumours (NETs) are an increasingly common, yet poorly understood form of cancer. Given the benign or non-specific symptoms of the disease, patients are often misdiagnosed for many years. The result is that by the time the correct diagnosis is in place, life expectancy is drastically reduced.

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NET Cancer webinar series

NET Cancer specialist at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference 2016.

Webinar Series with NET Cancer specialists

 A series of webinars from NET Cancer specialist. Produced by CNETS SG at Asia Pacific Neuroendocrine Tumor Society (APNETS) conference. Many of the talks are of particularly interest to NET Cancer advocates, and also to patients and caregivers.  View presentations from; Marianne Pavel, Rodney Hicks, Sugandha Dureja, Frank Ulrich Pape, David Tai, Kjell Oberg and many more. 

Find more from the CNETS Ipsen Webinar Series at https://itr8.wistia.com/projects/4eujigyhr0

Thanks to Carcinoid & Neuroendocrine Tumor Society of Singapore, CNETS SG, for sharing and producing the webinar. Also thanks to Ipsen Pharma for their support creating these videos.

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Policy recommendations NETs

 

The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy Recommendations on Neuroendocrine Tumors

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November 2015.

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Cycling for Net

Our Cycling Team will  leave Paris on 24 June, to arrive in Winchester on 28 June.  Professor Ramage will join our team, composed mainly of patients and carers, and he will accompany them to Winchester. In May 2015, members of our Association APTED (Association de Patients porteurs de Tumeurs Endocrines Diverses) met in Paris to…

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INCA Brochure

“It is the passion to change things for the betterment of neuroendocrine cancer patients that drives us forward as a deeply committed team, to unite patient advocates from around the globe in this effort.” The INCA Team. Read our new brochure here ....                     The International…

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Quality of life – Survey

  Results from the survey “Quality-of-life”, patients with neuroendocrine tumors (NET)1. The survey gathered information on the NET patient experience, including diagnosis, disease impact and management, quality of life, and knowledge and awareness levels.   Quality of life results Multidisciplinary approach Challenges of diagnosing   “This is the first time the NET patient experience has…

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Quality of life – at ENETS

  Results from the global survey “Quality-of-life”, patients with neuroendocrine tumors (NET)1. Presented at ENETS, European Neuroendocrine Tumor Society, in Barcelona. NET Cancer patient experience, including diagnosis, disease impact and management, quality of life, and knowledge and awareness levels.                 Patient Perspective  Time to Diagnosis  Multidisciplinary team  Patient Experience…

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