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INCA Animation vol 4 Infographic_26 10 2017-5-01
INCA Unmet Needs in NETs Initiative Results to be Presented at Key Medical Conferences around the World

Two of the INCA abstracts based on the findings of the Unmet Needs in the Global NET Community Initiative have been accepted for poster presentation: - "Unmet needs in the global NETs patient community from the perspectives of patients, patient advocates and NET health professionals" - at the upcoming 2018 NANETS Annual Multidisciplinary NET Disease…

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INCA at the 2nd Annual EURACAN Conference, Oxford, UK, 4-6 April 2018

Entitled “Sustainability and Innovation in Rare Cancer Management,“ the 2nd Annual EURACAN Conference, chaired by Prof Jean-Yves Blay and Prof Bass Hassan, offered an overview of the latest updates in rare cancers management. The conference covered multiple sessions over three days including: the Rare Cancer Pathway, facilitating communication between healthcare providers and patients, enabling technologies…

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The Second INCA/ENETS Symposium – a Collaborative Effort by NET Patient and Medical Leaders to Address Unmet Needs in NETs

Over 150 conference participants, including some of the thought-leaders in the NET medical community attended the Second INCA/ENETS Symposium on March 9, 2018. The significant increase in the number of people interested in the topics discussed compared to last year, clearly indicated the growing appreciation of the role patients can play. The focus was on…

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INCA Members Summit – an Inspirational and Constructive Meeting

The Annual INCA General Membership Meeting and Members Summit gathered 16 member organizations from 14 countries around the globe in Barcelona on March 5-6, just two days before the start of the 15th ENETS Conference. In addition to a review of NET Cancer Day 2017 and the Unmet Needs initiative, as well as draft plans…

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ESO Masterclass in Cancer Patient Advocacy – Learning to Be Better Advocates

56 patient advocacy leaders representing 23 European cancer patient networks gathered in Lisbon at the end of February 2018 to participate in the 3rd edition of the ESO Masterclass in Cancer Patient Advocacy "Working Towards Stronger and More Effective Advocacy in Europe", organized by the European School of Oncology (ESO). We looked at how we…

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The Unicorn Foundation Australia to host the 6th Annual APNETS Meeting

  The Unicorn Foundation looks forward to hosting the 6th Annual Meeting of the Asia Pacific Neuroendocrine Tumor Society (APNETs) taking place on 9-11 November 2018 at Melbourne Convention and Exhibition Centre. Due to the massive success of the 4th World Theranostics Congress in 2016, an international scientific meeting is to be convened by a…

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NET Research Foundation Supports a Project for Understanding and Treating NETs: In the Form of Laboratory Mini-Organs

Will the ability of a Dutch molecular geneticist to build miniature human organs in a Petri dish solve a decade’s old problem in NET research? How the tiniest laboratory replicas of your small intestine might help scientists run a dress rehearsal to see if your next treatment will work. Researchers use laboratory models to understand…

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Elke Claus from VZW NET & MEN Kanker, Belgium: I Hope That I Can Help Others Be Stronger

  Elke Claus, a passionate member of VZW NET & MEN Kanker, Belgium, shares her story in the respected magazine “allesoverkanker” ( everything about cancer), which is an initiative of the “Kom op tegen Kanker” (stand up against cancer) national Flemish organization. "I am hoping that my story will help others be stronger and get…

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PRRT trials for pheo/para patients have begun at the National Cancer Institute in Washington, D.C.

The Pheo Para Alliance announced that PRRT trials for pheo/para patients have begun at the National Cancer Institute, a division of the National Institutes of Health in Washington, D.C. More information on this important clinical trial can be found here. The alliance, which was formed by the merger of the Pheo Para Alliance and the…

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Every Day is NET Cancer Day: APTED France Gathered Patients and Physicians in Nantes

On 26th January, 2018, APTED held a meeting with patients and healthcare professionals in Nantes, France. The meeting was organized in partnership with Renaten, GTE (Groupes d'étude des tumeurs endocrines), Central University Hospital of Nantes and the Central University Hospital of Angers. Some of the topics under discussion covered: • surgical modalities in Pancreatic NETs:…

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