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Tag: INCA

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5th INCA NET Patient Advocacy Summit

 

For a fifth time since 2012 INCA brings together NET patient advocate leaders from around the globe to learn about the latest treatment developments and research, as well as share best practices and build common platforms. This year, for the first time INCA (International Neuroendocrine Cancer Alliance) and ENETs held a joint symposium between NET physicians and patient advocates from around the world, at the ENETS conference in Barcelona.

 

5th INCA NET Patient Advocacy Summit

Barcelona 8-10 March 2017

 

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NET Patient Foundation
NET Patient Foundation-UK Data Project 2017

Due to a lack of ICD-10 codes for neuroendocrine cancers, it has been difficult for NET Patient Foundation – UK, INCA member organization, to extract data about NET patients from the NHS cancer registry. It is crucial that we are able to obtain data about NET cancers from the cancer registry in order to be…

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CNETS Canada
CNETS Canada National NET Patient Conference (Videos)

In April 2017, CNETS Canada, INCA member organization, hosted a national NET Patient Conference in partnership with the Canadian Association of Nuclear Medicine (CANM). The conference theme was “A Time of HOPE” and showcased the latest diagnostics and treatments, with presentations from Canada’s top multidisciplinary NET specialists and two international experts. The event was a…

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CNETS India
CNETS India to expand reaching patients with partner Indian Cancer Society

CNETS India, INCA member organization, is planning collaboration with Indian Cancer Society, a nonprofit organisation working for cancer awareness and supporting patients in India, for promoting NET cancer awareness. CNETS India team shall be educating their cancer support volunteers about Neuroendocrine Cancers and partner with them to reach out to more and more patients at…

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NETRF
Presentations and videos from educational conference for patients in USA

The 6th Annual Focus on Neuroendocrine Tumors is a free, educational conference for patients, family members, and caregivers who are newly diagnosed, currently in treatment, or long-term survivors of neuroendocrine tumors. This year’s event was held on 5 May 2017 in Philadelphia, Pennsylvania on the University of Pennsylvania campus and was presented by Penn Medicine…

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Unicorn Foundation Australia research
Unicorn Foundation invites NET patients to participate in Defining NETs research

It’s been nearly twelve months since the “Defining NETs” research project of Unicorn Foundation - Australia, INCA member organization, started and while some valuable data has been collected so far, it is still behind the anticipated targets in recruitment. So far patients from Peter Mac, Royal North Shore and Lyell McEwin Hospital are assisting with…

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INCA ENETS Symposium 2017

 

This year, for the first time INCA (International Neuroendocrine Cancer Alliance) and ENETs held a joint symposium between NET physicians and patient advocates from around the world, at the ENETS conference in Barcelona.

 

INCA ENETS Symposium 2017

Blog post by Simone Leyden
Barcelona 8-10 March

 

 

 

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Pancreas Journal
Global NET Patient Survey published in medical journal Pancreas

The Pancreas, Journal of neuroendocrine tumors and pancreatic diseases and sciences, published the article Patient-Reported Experience of Diagnosis, Management, and Burden of Neuroendocrine Tumors: Results From a Large Patient Survey in the United States, spreading among medical community the US results of the Global NET Patient Survey in full text. The article was published in…

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NETRF grants
NETRF announced in April largest NET research commitment ever

NET Research Foundation (NETRF), INCA member organization, announced on 27 April 2017 its largest research commitment ever - $4 million in collaborative grants - most from its new Accelerator Grants program to study neuroendocrine tumors (NETs). Accelerator Grants recognize innovative and transformative research of NET drivers, capable of expanding our understanding of the disease and…

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EURACAN
INCA represented at EURACAN meeting in Lyon, France, in April 2017

INCA was part of a kick-off EURACAN meeting, held on 21-22 April 2017 in Lyon, France.  EURACAN Platform is a European Commission-funded project bringing together 28 European rare cancer institutions and organisations to work together in a unique collaboration. The centres are sharing infrastructures and collaborating on projects to help advance cancer research and treatment.…

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