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Tag: INCA

NET Patient Foundation
INCA Member in Focus: NET Patient Foundation UK

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present NET Patient Foundation UK by interviewing Catherine Bouvier who is is the CEO  of the organization. When was the organization founded and how? The NET Patient Foundation was founded in 2006, but the…

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Lets Talk about NETs
INCA prepares for NET Cancer Day 2017

INCA prepares for NET Cancer Day 2017, November 10, to reinforce the campaign Let’s Talk about NETs with a focus on Unmet needs in information about NETs. This year the campaign will again distribute NET Cancer Day coffee cups, which can be used to strike partnerships with local cafes, hospitals, public institutions, to help raise…

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PriMeMasterclass in NETs, NET Cancer Day
INCA on Meaningful Patient Advocacy – at a prIME Masterclass in NETs on NET Cancer Day

Teodora Kolarova, INCA Executive Director was invited to speak about Meaningful Patient Advocacy at the prIME Masterclass in Neuroendocrine Tumours to be held on 10-11 November in Amsterdam, the Netherlands (venue: De Koepelkerk at the Renaissance Amsterdam Hotel). The Masterclass, co-chaired by Dermot O’Toole and Philippe Ruszniewski, will engage experts in the field of neuroendocrine…

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Unicorn Foundation Australia
INCA Member in Focus: The Unicorn Foundation Australia

Every month INCA presents one of its members via an interview with the founders and governance. This month we are glad to present Unicorn Foundation Australia by interviewing Simone Leyden who is is the CEO and Co-Founder of the organization. When was the organization founded and how? The Unicorn Foundation was formed in late 2009 and…

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Ipsen-INCA Patient dialogue
INCA discusses critical issues for the patient community at IPSEN’s Dialogue for Patient Care

On March 13, 2017 INCA took part in a meeting with Ipsen CEO David Meek, who invited three patient advocates from the United States and Europe to discuss such critical issues as patient empowerment, patient-centered research, involving patients in the drug development process, access to innovative drugs and the role of real-world data. The meeting…

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WECAN meeting, July 2017, Milan
INCA joins pan-European patient leaders for a WECAN strategy meeting in Milan

The leaders of pan-European cancer patient networks, the "Workgroup of European Cancer patient Advocacy Networks (WECAN), met in Milan for a 2-day strategy retreat on 11 – 12 July 2017 in Milan, Italy.  These were two very productive days with the leaders of 15 pan-European cancer patient organizations. INCA is a member organization and was…

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INCA summit barcelona header
5th INCA NET Patient Advocacy Summit

 

For a fifth time since 2012 INCA brings together NET patient advocate leaders from around the globe to learn about the latest treatment developments and research, as well as share best practices and build common platforms. This year, for the first time INCA (International Neuroendocrine Cancer Alliance) and ENETs held a joint symposium between NET physicians and patient advocates from around the world, at the ENETS conference in Barcelona.

 

5th INCA NET Patient Advocacy Summit

Barcelona 8-10 March 2017

 

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inca header NET Pat UK
NET Patient Foundation-UK Data Project 2017

Due to a lack of ICD-10 codes for neuroendocrine cancers, it has been difficult for NET Patient Foundation – UK, INCA member organization, to extract data about NET patients from the NHS cancer registry. It is crucial that we are able to obtain data about NET cancers from the cancer registry in order to be…

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CNETSCanada-Sonya Carrie-2
CNETS Canada National NET Patient Conference (Videos)

In April 2017, CNETS Canada, INCA member organization, hosted a national NET Patient Conference in partnership with the Canadian Association of Nuclear Medicine (CANM). The conference theme was “A Time of HOPE” and showcased the latest diagnostics and treatments, with presentations from Canada’s top multidisciplinary NET specialists and two international experts. The event was a…

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CNETS India
CNETS India to expand reaching patients with partner Indian Cancer Society

CNETS India, INCA member organization, is planning collaboration with Indian Cancer Society, a nonprofit organisation working for cancer awareness and supporting patients in India, for promoting NET cancer awareness. CNETS India team shall be educating their cancer support volunteers about Neuroendocrine Cancers and partner with them to reach out to more and more patients at…

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