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Tag: INCA

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INCA ENETS Symposium 2017

 

This year, for the first time INCA (International Neuroendocrine Cancer Alliance) and ENETs held a joint symposium between NET physicians and patient advocates from around the world, at the ENETS conference in Barcelona.

 

INCA ENETS Symposium 2017

Blog post by Simone Leyden
Barcelona 8-10 March

 

 

 

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How to improve NET care

 

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists and industries working to address the needs of the NET community. The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy recommendations on how
NET care can be improved

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November, World NET Cancer Day.

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The NET Platform members call for more action on NETs

The NET Platform is the coalition of physicians, researchers, patient representatives, nurse specialists
and industries working to address the needs of the NET community.

 

The NET Platform members call for more action on Neuroendocrine Tumours (NETs)

Neuroendocrine tumours (NETs) are an increasingly common, yet poorly understood form of cancer. Given the benign or non-specific symptoms of the disease, patients are often misdiagnosed for many years. The result is that by the time the correct diagnosis is in place, life expectancy is drastically reduced.

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Policy recommendations NETs

 

The challenges of NETs, – Knowledge in diagnosis, Patient journey, Research and Innovation.

Policy Recommendations on Neuroendocrine Tumors

To address the numerous challenges in the management of rare cancers such as neuroendocrine tumours (NETs), NET patient representatives from INCA and its member organizations and leading healthcare professionals (The NET Platform), met with policy makers in the European Parliament on 10 November 2015.

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Let’s Talk About NETs

Unfortunately in the crowded space of health promotion amongst not for profits and patient groups, less common cancers such as NET Cancer (neuroendocrine cancer) do not get the attention that they deserve and need.

Let’s Talk About NETs” this World NET Cancer Day Nov 10.

 

This year we propose that we simplify our complicated message and with the help of our patients and supporters around the country (and around the globe) spread the news through “Let’s Talk About NETs”.

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4th INCA NET Patient Advocacy Summit

For a fourth time since 2012 INCA brings together NET patient advocate leaders from around the globe to learn about the latest treatment developments and research, as well as share best practices and build common platforms.

4th INCA NET Patient Advocacy Summit in Plovdiv (Bulgaria), 11-13 July 2016.

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ESO Masterclass in Cancer Patient Advocacy

INCA has had the pleasure of participating in the 2nd Masterclass in Cancer Patient Advocacy: Working Towards Stronger and More Effective Advocacy in Europe, taking place on 24-26 June in Milan, Italy.

 

INCA shares best practice

Evidence-based activism at the 2nd Masterclass in Cancer Patient Advocacy held by European School of Oncology (ESO)

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First Global Neuroendocrine Tumor Patient Survey Results Published in Journal of Global Oncology

  “Patient-Reported Burden of a Neuroendocrine Tumor (NET) Diagnosis: Results From the First Global Survey of Patients With NETs” - a collaborative effort between the International Neuroendocrine Cancer Alliance (INCA) and Novartis, was published in the Journal of Global Oncology. The Global NET Patient Survey is the first large, global initiative that attempts to characterize…

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INCA support the NET Cancer community in UK

  INCA Strongly Supports the NET Community in the UK in its efforts to access to PRRT INCA strongly supports the neuroendocrine (NET) cancer community in the United Kingdom in its efforts to alleviate the devastating side effect of removing an outstanding, life changing treatment, Peptide Receptor Radionuclide Therapy (PRRT) Lutetium-177 DOTA Octreotate, for patients with progressive, inoperable neuroendocrine…

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INCA Appoints First Executive Director

PRESS RELEASE,  March 2, 2016   The International Neuroendocrine Cancer Alliance (INCA) Appoints First Executive Director, Teodora Kolarova     Ron Hollander, President of the International Neuroendocrine Cancer Alliance (INCA) and Executive Director of the NET Research Foundation (USA), is pleased to announce the appointment of Teodora Kolarova of Bulgaria as INCA’s first Executive Director. Ms. Kolarova…

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