Pheo Para Alliance Celebrates Merger with Pheo Para Troopers at its 9th Annual Gala
June 24, 2018|
Bethesda, MD – “Stronger United” was the theme of the Pheo Para Alliance’s 9th annual gala in May celebrating its recent merger with the Pheo Para Troopers and raising over $70,000 to advance its mission to support pheochromocytoma and paraganglioma (Pheo Para) patients through research and advocacy.
Prior to the merger, the Pheo Para Alliance focused on its international role in the advancement of Pheo Para diagnostic and treatment research – raising over $2 million for various initiatives since 2007. The Troopers, an international patient network, provided critical educational resources to patients diagnosed with the rare condition. Combined, the new Alliance is a global force well poised to make great strides in research, education, and advocacy on behalf of patients.
“Though they apply different means of support, the end beneficiaries are the same – the patients,” stated Pheo Para Alliance President Emily Collins. “Joining forces makes perfect sense and gives us an opportunity to apply a holistic approach to addressing patient needs.”
The 2018 gala honored U.S. House Representative Leonard Lance (R-NJ) for his leadership as Co-Chair of the U.S. Congress’ bicameral Rare Disease Congressional Caucus and founding Alliance members and longtime supporters Giselle and Ben Huberman.
The gala also featured special guest speaker Sean Swarner from the inspiring True North documentary. Sean, a two-time cancer survivor, not only survived what everyone deemed terminal cancer – twice, he also beat the odds of survival by climbing the seven peaks of the world, including Mount Everest, with only one functioning lung.
About Pheo Para: Pheochromocytoma (Pheo) is a rare neuroendocrine tumor (NET) originating in the adrenal glands, specifically, in a section called the medulla of the adrenal glands. Paraganglioma (Para) is a tumor that is closely related to Pheochromocytoma. It originates from outside the adrenal glands, specifically from the parasympathetic or sympathetic nervous system. Both types of these rare NETs derive from genetic gene mutations and can be benign or malignant. For more information, please visit the Alliance on FB.