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Lets’ Talk about NETs on 10th November
INCA’s “Let’s Talk about NETs” campaign focuses on unmet needs in the NET community. These needs were identified via an online survey among NET patients and their caregivers, patient advocate leaders, and healthcare professionals in 26 countries. The survey results were further enriched through in-depth interviews with 10 clinical leaders and nine patient advocate leaders from around the globe.
Identified significant unmet needs
The assessment conducted by INCA identified significant unmet needs: in the provision of information to patients at diagnosis, and access to the latest diagnostics and to essential services and multidisciplinary care. A lack of patient involvement in research strategies and clinical trials also transpired.
For inquiries and information regarding World NET Cancer Day and the “Let’s Talk About NETs” Campaign, please contact our member organization in your country.