Let’s Talk About NETs
Unfortunately in the crowded space of health promotion amongst not for profits and patient groups, less common cancers such as NET Cancer (neuroendocrine cancer) do not get the attention that they deserve and need.
Let’s Talk About NETs” this World NET Cancer Day Nov 10.
This year we propose that we simplify our complicated message and with the help of our patients and supporters around the country (and around the globe) spread the news through “Let’s Talk About NETs”.
To make this day successful, we are seeking support from all over the world.
We want to encourage patients and supporters to start the conversation about NET Cancers in their local community. We are asking people, cafeterias, cafes and others, to use our World Net Cancer Day (Let’s Talk About NETs) branded coffee cups for the day. We will provide (at no charge) you with our branded coffee cups, lids and promotional material.
World NET Cancer Day
World NET Cancer Day is an annual, awareness-raising event coordinated by the International Neuroendocrine Cancer Alliance (INCA) at an international level, involving INCA members organizations and the NET cancer community all over the world.
Neuroendocrine cancer (NETs) is the umbrella term for a group of unusual, often slow growing cancers, which develop from cells in the diffuse endocrine systems. They are found most commonly in the lung or gastrointestinal system, but they can arise in other parts of the body, such as the pancreas, ovary and testes, among other sites. NET cancers are on the rise and can affect both men and women at various stages of their life, from 17 – 90 years old.
The aim of World NET Cancer Day is to:
- Raise awareness of NET cancers among decision makers, health professionals and the general public. Accurate information is key to improving quality of life and prognosis for NET cancer patients and can decrease misdiagnosis.
- Focus on NET cancers for a day to bring hope and information to people living with NET cancers, their caregivers and families.
- Ensure equity in access to care and treatment for NET cancer patients around the world.
- Encourage more funds for research, treatments, patient support and resources for NET cancers.
Order your cups now
Contact your NET Cancer organization, in your country, for more information and how to order cups and promotion material.
If you have a cafe in mind, contact your local cafe owner and ask them to use our specially branded take away coffee cups on Thursday November 10. Download our letter explaining the idea and take out to your local community including hospitals.
We will support the cafe owners by listing them on the NET Cancer website in their country, and promoting them through social media. We ask our supporters to take photos and use #letstalkaboutNETs to spread the word.
World NET Awareness Day on social media
We need your help to spread the message on social media. Use your social media accounts to help us spread the news about NET Cancers. Using the power of social media we are hoping to highlight the key challenges NET Cancer patients face.
Take photos and use #letstalkaboutNETs to spread the word.
Social media cheat sheet – “Let’s Talk About NETs”
Download our poster here ….
For enquires and information regarding World NET Cancer and the “Let’s Talk About NETs Campaign”, please contact our member organization in your country.
Download our NET Cancer Day ribbon here ……………
Help us make this World NET Cancer Day our biggest yet!
or 0413 933 304
|Belgium||vzw NET & MEN Kanker Belgium||info(at)net-men-kanker.be|
APOZ & Friends
|Canada||Carcinoid-Neuroendocrine Tumour Society (CNETS Canada)||info(at)cnetscanada.org|
|France||APTED, L’Association des Patients porteurs de Tumeurs Endocrines Diverses||http://www.apted.fr/contacts-locaux/|
|Germany||Netzwerk Neuroendokrine Tumoren
(NeT) e. V.
|Japan||NPO PanCAN Japan||http://pancan.jp|
|Norway||CarciNor, foreningen for personer med nevroendokrin kreft||post(at)carcinor.no|
|New Zealand||Unicorn Foundation NZ||hello(at)unicornfoundation.org.nz|
|Singapore||Carcinoid & Neuroendocrine Tumor Society (CNETS SG) Singapore||williamc(at)cnets.org|
|Sweden||CARPA The Carcinoid Patient Association||info(at)carpapatient.se|
|United Kingdom||AMEND (Association for Multiple Endocrine Neoplasia Disorders)||http://www.amend.org.uk/about-us/contact-us/83-amend/1-jo-grey.html|
|United Kingdom||NET Patient Foundation||http://www.netpatientfoundation.org/contact-us/|
|United States||Neuroendocrine Tumor Research Foundation||info(at)netrf.org|
|United States||The Carcinoid Cancer Foundation||http://www.carcinoid.org/contact/|
|United States||The Pheo Para Troopers||http://www.pheoparatroopers.org/contact/|
Download our poster here ….