NET Patient Network is an organisation of Neuroendocrine Tumour (NET) patients in Ireland. We formed NET Patient Network in 2012 to provide information and support services for NET patients in Ireland.
The primary purpose of NET Patient Network is to put Irish NET patients in touch with each other so that we can collectively help and support each other through living with our disease. Both newly diagnosed as well as existing patients, some of whom have lived with NETs for many years, can get great benefit and comfort from interacting with and supporting each other.
Our first objective is to compile a list of all NET patients in Ireland. We want to give greater weight to your voice in dealing with the HSE and the medical establishment.
We plan to have an annual NET Patient day where we hope to gather as many NET patients and their families together with Irish and international doctors. We will have group discussions and questions and answers with experts in the field.